Recruiting African-American research participation in the Jackson Heart Study: methods, response rates, and sample description

The sampling and recruitment methods, response rate, and cohort description for the all-African-American Jackson Heart Study (JHS) are detailed. Four subsamples of participants residing in the Jackson, Mississippi metropolitan statistical area (MSA) were included: random, volunteer, ARIC (continuing...

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Bibliographic Details
Published in:Ethnicity & disease Vol. 15; no. 4 Suppl 6; p. S6
Main Authors: Fuqua, Sonja R, Wyatt, Sharon B, Andrew, Michael E, Sarpong, Daniel F, Henderson, Frances R, Cunningham, Margie F, Taylor, Jr, Herman A
Format: Journal Article
Language:English
Published: United States 01.10.2005
Subjects:
Adult
Aged
Aged, 80 and over
Black or African American
Black People
Cardiovascular Diseases - epidemiology
Cardiovascular Diseases - ethnology
Female
Humans
Male
Middle Aged
Mississippi - epidemiology
Patient Selection
Prospective Studies
Research Design
Research Subjects
Residence Characteristics
Mississippi
ISSN:1049-510X
Online Access:Get more information
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Summary:The sampling and recruitment methods, response rate, and cohort description for the all-African-American Jackson Heart Study (JHS) are detailed. Four subsamples of participants residing in the Jackson, Mississippi metropolitan statistical area (MSA) were included: random, volunteer, ARIC (continuing from Atherosclerosis Risk in Communities study), and family. A community-driven recruitment model was developed, and community representatives guided recruitment. 96% (n=5,302) of target enrollment was achieved with diversity in sex, education, and income. The JHS cohort provides a sample of African-American adults for longitudinal investigation. Cohort recruitment was challenging. The JHS experiences provide useful lessons for observational epidemiological studies recruiting African-American research participation. Co-participation of researchers and researched in study design and realistic evidence of community benefit were crucial to recruitment success.
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ISSN:1049-510X