PREparedness, REsponse and SySTemic transformation (PRE-RE-SyST): a model for disability-inclusive pandemic responses and systemic disparities reduction derived from a scoping review and thematic analysis

Background People with disabilities (PwD) have been facing multiple health, social, and economic disparities during the COVID-19 pandemic, stemming from structural disparities experienced for long time. This paper aims to present the PREparedness, RESponse and SySTemic transformation (PRE-RE-SyST):...

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Vydáno v:	International journal for equity in health Ročník 20; číslo 1; s. 204 - 17
Hlavní autoři:	Jesus, Tiago S., Kamalakannan, Sureshkumar, Bhattacharjya, Sutanuka, Bogdanova, Yelena, Arango-Lasprilla, Juan Carlos, Bentley, Jacob, Landry, Michel D., Papadimitriou, Christina
Médium:	Journal Article
Jazyk:	angličtina
Vydáno:	London BioMed Central 14.09.2021 BioMed Central Ltd Springer Nature B.V BMC
Témata:	Action Coronaviruses COVID-19 COVID-19 - epidemiology COVID-19 - prevention & control Crises Decision making Disability Disabled persons Economics Emergencies Empirical analysis Epidemics Equality and Human Rights Forecasts and trends Grey literature Health aspects Health authorities Health care disparities Health disparities Health equity Health Policy Health Promotion and Disease Prevention Health risk assessment Health risks Health Services Research Health Status Disparities Humans Icebergs Infections Influence International organizations Management Marginalized groups Medicine Medicine & Public Health Models, Organizational Pandemics Pandemics - prevention & control People with disabilities Persons with Disabilities Policy making Public Health Public Health Practice Reduction Resilience Review Rules Social aspects Social determinants of health Social Justice Social Policy Socioeconomic factors Transformation Underserved populations United States United States COVID-19 Social determinants of health Disabled persons Health equity Public health
ISSN:	1475-9276, 1475-9276
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Shrnutí:	Background People with disabilities (PwD) have been facing multiple health, social, and economic disparities during the COVID-19 pandemic, stemming from structural disparities experienced for long time. This paper aims to present the PREparedness, RESponse and SySTemic transformation (PRE-RE-SyST): a model for a disability-inclusive pandemic responses and systematic disparities reduction. Methods Scoping review with a thematic analysis was conducted on the literature published up to mid-September 2020, equating to the initial stages of the COVID-19 pandemic. Seven scientific databases and three preprint databases were searched to identify empirical or perspective papers addressing health and socio-economic disparities experienced by PwD as well as reporting actions to address them. Snowballing searches and experts’ consultation were also conducted. Two independent reviewers made eligibility decisions and performed data extractions on any action or recommended action to address disparities. A thematic analysis was then used for the model construction, informed by a systems-thinking approach (i.e., the Iceberg Model). Results From 1027 unique references, 84 were included in the final analysis. The PRE-RE-SyST model articulates a four-level strategic action to: 1) Respond to prevent or reduce disability disparities during a pandemic crisis; 2) Prepare ahead for pandemic and other crises responses; 3) Design systems and policies for a structural disability-inclusiveness; and 4) Transform society’s cultural assumptions about disability. ‘Simple rules’ and literature-based examples on how these strategies can be deployed are provided. Conclusion The PRE-RE-SyST model articulates main strategies, ‘simple rules’ and possible means whereby public health authorities, policy-makers, and other stakeholders can address disability disparities in pandemic crises, and beyond. Beyond immediate pandemic responses, disability-inclusiveness is needed to develop everyday equity-oriented policies and practices that can transform societies towards greater resiliency, as a whole, to pandemic and other health and social emergencies.
Bibliografie:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 14 ObjectType-Review-3 content type line 23
ISSN:	1475-9276 1475-9276
DOI:	10.1186/s12939-021-01526-y