Estimating minimally important difference (MID) in PROMIS pediatric measures using the scale-judgment method

Objective To assess minimally important differences (MIDs) for several pediatrie self-report item banks from the National Institutes of Health Patient-Reported Outcomes Measurement Information System® (PROMIS®). Methods We presented vignettes comprising sets of two completed PROMIS questionnaires an...

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Veröffentlicht in:Quality of life research Jg. 25; H. 1; S. 13 - 23
Hauptverfasser: Thissen, David, Liu, Yang, Magnus, Brooke, Quinn, Hally, Gipson, Debbie S., Dampier, Carlton, Huang, I-Chan, Hinds, Pamela S., Selewski, David T., Reeve, Bryce B., Gross, Heather E., DeWalt, Darren A.
Format: Journal Article
Sprache:Englisch
Veröffentlicht: Cham Springer 01.01.2016
Springer International Publishing
Springer Nature B.V
Schlagworte:
Adolescent
Adolescents
Adult
Aged
Aged, 80 and over
Child
Clinical outcomes
Delphi method
Depression - psychology
Depressive disorders
Epidemiology
Fatigue
Fatigue - psychology
Geometric lines
Health outcomes
Health services
Health Status
Hospitals
Humans
Information systems
Item response theory
Judgment
Male
Medicine
Medicine & Public Health
METHODS
Middle Aged
National Institutes of Health (U.S.)
Pain - psychology
Parents
Patients
Pediatrics
Public Health
Quality of life
Quality of Life - psychology
Quality of Life Research
Questionnaires
Self Report
Sociology
Standard deviation
Surveys and Questionnaires
Teenagers
United States
United States
Pediatrics
Patient-reported outcomes
PROMIS
Item response theory
Minimally important difference
Self-report
ISSN:0962-9343, 1573-2649
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Zusammenfassung:Objective To assess minimally important differences (MIDs) for several pediatrie self-report item banks from the National Institutes of Health Patient-Reported Outcomes Measurement Information System® (PROMIS®). Methods We presented vignettes comprising sets of two completed PROMIS questionnaires and asked judges to declare whether the individual completing those questionnaires had an important change or not. We enrolled judges (including adolescents, parents, and clinicians) who responded to 24 vignettes (six for each domain of depression, pain interference, fatigue, and mobility). We used item response theory to model responses to the vignettes across different judges and estimated MID as the point at which 50 % of the judges would declare an important change. Results We enrolled 246 judges (78 adolescents, 85 parents, and 83 clinicians). The MID estimated with clinician data was about 2 points on the PROMIS T-score scale, and the MID estimated with adolescent and parent data was about 3 points on that same scale. Conclusions The MIDs enhance the value of PROMIS pediatric measures in clinical research studies to identify meaningful changes in health status over time.
Bibliographie:ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
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I-Chan Huang’s present affiliation and address is Department of Epidemiology and Cancer Control, St. Jude Children’s Research Hospital, Memphis, TN, United States
ISSN:0962-9343
1573-2649
DOI:10.1007/s11136-015-1058-8