Novel linkage approach to join community-acquired and national data

Background Community optometrists in Scotland have performed regular free-at-point-of-care eye examinations for all, for over 15 years. Eye examinations include retinal imaging but image storage is fragmented and they are not used for research. The Scottish Collaborative Optometry-Ophthalmology Netw...

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Vydáno v:BMC medical research methodology Ročník 24; číslo 1; s. 13 - 8
Hlavní autoři: Tochel, Claire, Pead, Emma, McTrusty, Alice, Buckmaster, Fiona, MacGillivray, Tom, Tatham, Andrew J., Strang, Niall C., Dhillon, Baljean, Bernabeu, Miguel O.
Médium: Journal Article
Jazyk:angličtina
Vydáno: London BioMed Central 17.01.2024
BioMed Central Ltd
Springer Nature B.V
BMC
Témata:
Cameras
Community optometry
Data Collection
Data linkage
Data mining
Datasets
Diagnostic imaging
Disease
Early disease detection
Eye examinations
Health Sciences
Humans
Image analysis
Longitudinal data
Medical Record Linkage
Medical Records
Medical Records Systems, Computerized
Medical research
Medicine
Medicine & Public Health
Medicine, Experimental
Methods
Ophthalmology
Optometry
Patients
Phonics
Primary care
Scotland
Statistical Theory and Methods
Statistics for Life Sciences
Theory of Medicine/Bioethics
Scotland
United Kingdom > UK
Early disease detection
Image analysis
Community optometry
Longitudinal data
Data linkage
ISSN:1471-2288, 1471-2288
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Shrnutí:Background Community optometrists in Scotland have performed regular free-at-point-of-care eye examinations for all, for over 15 years. Eye examinations include retinal imaging but image storage is fragmented and they are not used for research. The Scottish Collaborative Optometry-Ophthalmology Network e-research project aimed to collect these images and create a repository linked to routinely collected healthcare data, supporting the development of pre-symptomatic diagnostic tools. Methods As the image record was usually separate from the patient record and contained minimal patient information, we developed an efficient matching algorithm using a combination of deterministic and probabilistic steps which minimised the risk of false positives, to facilitate national health record linkage. We visited two practices and assessed the data contained in their image device and Practice Management Systems. Practice activities were explored to understand the context of data collection processes. Iteratively, we tested a series of matching rules which captured a high proportion of true positive records compared to manual matches. The approach was validated by testing manual matching against automated steps in three further practices. Results A sequence of deterministic rules successfully matched 95% of records in the three test practices compared to manual matching. Adding two probabilistic rules to the algorithm successfully matched 99% of records. Conclusions The potential value of community-acquired retinal images can be harnessed only if they are linked to centrally-held healthcare care data. Despite the lack of interoperability between systems within optometry practices and inconsistent use of unique identifiers, data linkage is possible using robust, almost entirely automated processes.
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ISSN:1471-2288
1471-2288
DOI:10.1186/s12874-024-02143-3