A Systematic Review of Barriers and Facilitators to Minority Research Participation Among African Americans, Latinos, Asian Americans, and Pacific Islanders

To assess the experienced or perceived barriers and facilitators to health research participation for major US racial/ethnic minority populations, we conducted a systematic review of qualitative and quantitative studies from a search on PubMed and Web of Science from January 2000 to December 2011. W...

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Vydáno v:	American journal of public health (1971) Ročník 104; číslo 2; s. e16 - e31
Hlavní autoři:	George, Sheba, Duran, Nelida, Norris, Keith
Médium:	Journal Article
Jazyk:	angličtina
Vydáno:	United States American Public Health Association 01.02.2014
Témata:	African Americans Age Factors Altruism Asian Americans Barriers Clinical trials Community Health Community-Based Participatory Research - organization & administration Consent Cooperative Behavior Cultural Characteristics Cultural Competency Ethics Ethnic groups Ethnicity Ethnicity - psychology Ethnography Health research Health Services Accessibility Humans Medical research Minority & ethnic groups Minority groups Multiculturalism & pluralism Online Systematic Reviews Other Race/Ethnicity Pacific Islander people Participation Patient Selection Public health Public Health Practice Quantitative analysis Quantitative research Racial Groups - psychology Racism Racism - psychology Recruitment Research Design Research Subjects - psychology Sex Factors Social Science Social Stigma Social Support Socioeconomic Factors Studies Systematic review Trust United States > US
ISSN:	0090-0036, 1541-0048, 1541-0048
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Popis
Shrnutí:	To assess the experienced or perceived barriers and facilitators to health research participation for major US racial/ethnic minority populations, we conducted a systematic review of qualitative and quantitative studies from a search on PubMed and Web of Science from January 2000 to December 2011. With 44 articles included in the review, we found distinct and shared barriers and facilitators. Despite different expressions of mistrust, all groups represented in these studies were willing to participate for altruistic reasons embedded in cultural and community priorities. Greater comparative understanding of barriers and facilitators to racial/ethnic minorities’ research participation can improve population-specific recruitment and retention strategies and could better inform future large-scale prospective quantitative and in-depth ethnographic studies.
Bibliografie:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 14 ObjectType-Review-3 content type line 23 ObjectType-Undefined-4 ObjectType-Article-2 ObjectType-Feature-1 S. George originated the project, led the writing, and, along with N. Duran, reviewed studies, developed the coding scheme, and conducted the analysis. N. Duran developed and managed the database used to summarize the data, retrieved and coded the relevant articles, conducted the analyses, and cowrote the article. K. Norris co-originated the project and cowrote the article. Peer Reviewed Contributors
ISSN:	0090-0036 1541-0048 1541-0048
DOI:	10.2105/AJPH.2013.301706