The PCOC Symptom Assessment Scale (SAS): A valid measure for daily use at point of care and in palliative care programs

Very few measures are used successfully as part of routine care within national palliative care outcome programs. Only a handful of studies examine these measures. The aim of this study is to evaluate the validity of a measure used in a national outcomes program: the Palliative Care Outcomes Collabo...

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Vydané v:PloS one Ročník 16; číslo 3; s. e0247250
Hlavní autori: Daveson, Barbara A., Allingham, Samuel Frederic, Clapham, Sabina, Johnson, Claire E., Currow, David C., Yates, Patsy, Eagar, Kathy
Médium: Journal Article
Jazyk:English
Vydavateľské údaje: United States Public Library of Science 25.03.2021
Public Library of Science (PLoS)
Predmet:
Activities of daily living
Brochures
Collaboration
Editing
Ethics
Funding
Head & neck cancer
Health services
Insomnia
Medicine and Health Sciences
Methodology
Palliation
Palliative care
Pancreatic cancer
Patients
Population
Quantitative psychology
Validation studies
Validity
Queensland Australia
Australia
Germany
New South Wales Australia
ISSN:1932-6203, 1932-6203
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Shrnutí:Very few measures are used successfully as part of routine care within national palliative care outcome programs. Only a handful of studies examine these measures. The aim of this study is to evaluate the validity of a measure used in a national outcomes program: the Palliative Care Outcomes Collaboration Symptom Assessment Scale (PCOC SAS). A retrospective multi-site cohort study with secondary analysis of routinely collected patient-level data to assess PCOC SAS's internal consistency, construct validity, reliability, interpretability, acceptability and sensitivity. The analyses used two sets, with data collected by inpatient and community palliative care services registered with the Australian national PCOC. Dataset one included 1,117 patients receiving palliative care from 21 services. Dataset two included 5,294 patients receiving palliative care from 119 PCOC services. PCOC SAS demonstrated the ability to detect and discriminate distress by palliative care phase, functional status and diagnosis. Excellent and good convergent and discriminant validity were demonstrated. Fair through to substantial inter-rater and intra-rater reliability levels were evidenced. Sufficient interpretability resulted along with necessary levels of acceptability and sensitivity. PCOC SAS is a valid and reliable patient-reported outcome measure suitable for use in routine clinical care with patients requiring palliative and or end-of-life care, including in national outcomes programs.
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Competing Interests: The author(s) declared the following potential conflicts of interest with respect to the research, authorship, and/or publication of this article: SC and KE (with other colleagues) developed the PCOC SAS. Otherwise, the authors declare that they have no competing interests. This does not alter our adherence to PLOS ONE policies on sharing data and materials.
These authors also contributed equally to this work.
ISSN:1932-6203
1932-6203
DOI:10.1371/journal.pone.0247250