“You First Have to Check Out the Doctors”: Transition Expectations and Experiences of Survivors After Pediatric Cancer

ABSTRACT Purpose The shift from child‐centered to adult‐focused healthcare presents social and psychological challenges for adolescents and young adults with chronic conditions, which can affect their participation in follow‐up care. This study aims to investigate the factors that influence patient‐...

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Veröffentlicht in:Cancer medicine (Malden, MA) Jg. 13; H. 23; S. e70455 - n/a
Hauptverfasser: Aleshchenko, Ekaterina, Langer, Thorsten, Calaminus, Gabriele, Glogner, Juliane, Haugke, Henrike, Trocchi, Pietro, Swart, Enno, Baust, Katja
Format: Journal Article
Sprache:Englisch
Veröffentlicht: United States John Wiley & Sons, Inc 01.12.2024
John Wiley and Sons Inc
Wiley
Schlagworte:
Adolescent
Adult
Agreements
Cancer
Cancer Survivors - psychology
cancer survivorship
Caregivers
Child
Children
Female
Germany
Health behavior
Health care
Hospitals
Humans
Interviews
Male
Motivation
Narratives
Neoplasms - psychology
Neoplasms - therapy
pediatric cancer
Pediatrics
Qualitative Research
Regression analysis
Social behavior
Social interactions
stereotype priming model
Teenagers
theory of planned behavior
transition from pediatric to adult healthcare
Transition to Adult Care
Young Adult
Young adults
Germany
United States > US
theory of planned behavior
cancer survivorship
transition from pediatric to adult healthcare
stereotype priming model
pediatric cancer
ISSN:2045-7634, 2045-7634
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Zusammenfassung:ABSTRACT Purpose The shift from child‐centered to adult‐focused healthcare presents social and psychological challenges for adolescents and young adults with chronic conditions, which can affect their participation in follow‐up care. This study aims to investigate the factors that influence patient‐driven motivations for adhering to follow‐up recommendations, while also exploring the barriers and supports that impact the transition process for pediatric cancer survivors. Methods We developed interview guidelines grounded in the Theory of Planned Behavior (TPB) and the stereotype priming model (SPM). We conducted 10 episodic narrative interviews with pediatric cancer survivors during their transition phase. The interview transcripts were analyzed through qualitative thematic content analysis, followed by quantitative analysis using multiple regression models. This research is a part of the broader VersKiK study, which aims to propose enhancements to the organization of (long‐term) follow‐up care after cancer in childhood and adolescence in Germany. Results In this study, pediatric cancer survivors transitioning to adult healthcare showed varied motivations for follow‐up care. Positive attitudes, driven by understanding the benefits, improved engagement, while anxiety and fear of losing familiar care created barriers. Family and peer support played a key role in encouraging adherence. Perceived control over healthcare management, supported by organizational help, was crucial, but logistical and financial challenges often undermined this control. Conclusions Several motives underlying pediatric cancer survivors' behavior significantly influence their transition experiences. Enhancing positive attitudes, strengthening social support, and improving perceived control through targeted interventions may support smoother transitions to adult healthcare facilities. Trial Registration: Registered at German Clinical Trial Register (IDs: DRKS00025960 and DRKS00026092)
Bibliographie:Funding
This work was supported by the Federal Joint Committee (G‐BA) Innovation Fund in Germany (01VSF19013).
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Funding: This work was supported by the Federal Joint Committee (G‐BA) Innovation Fund in Germany (01VSF19013).
ISSN:2045-7634
2045-7634
DOI:10.1002/cam4.70455