Advancing inclusive research with people with profound and multiple learning disabilities through a sensory-dialogical approach

People with profound and multiple learning disabilities are often excluded from the processes of knowledge production and face barriers to inclusion in research due to cognitive and communicative challenges. Inclusive research-even when intending to be inclusive-tends to operate within criteria that...

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Bibliographic Details
Published in:Journal of intellectual disabilities Vol. 27; no. 1; p. 40
Main Authors: Gjermestad, Anita, Skarsaune, Synne N, Bartlett, Ruth L
Format: Journal Article
Language:English
Published: England 01.03.2023
Subjects:
Community-Based Participatory Research
Disabled Persons
Humans
Intellectual Disability
Learning Disabilities
Inclusive research
profound intellectual disability
method
sensory-dialogical
ISSN:1744-6309, 1744-6309
Online Access:Get more information
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Summary:People with profound and multiple learning disabilities are often excluded from the processes of knowledge production and face barriers to inclusion in research due to cognitive and communicative challenges. Inclusive research-even when intending to be inclusive-tends to operate within criteria that exclude people with profound and multiple learning disabilities. The aim of this article is to provide a state-of-the-art review of the topic of inclusive research involving people with profound disabilities and thereby challenge traditional assumptions of inclusive research. The review presents themes that will inform a discussion on how to challenge the criteria in ways that make it possible to understand inclusive research for people who communicate in unconventional ways. We argue that a fruitful way of rethinking inclusive research is by applying a sensory-dialogical approach that privileges the dialogical and sensory foundations of the research. We suggest this might be a way to understand inclusive research that regards the person's communicative and cognitive distinctiveness.
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ISSN:1744-6309
1744-6309
DOI:10.1177/17446295211062390