Voice of People with Fragile X Syndrome and Their Families: Reports from a Survey on Treatment Priorities

To date, there has been limited research on the primary concerns and treatment priorities for individuals with fragile X syndrome (FXS) and their families. The National Fragile X Foundation in collaboration with clinical investigators from industry and academia constructed a survey to investigate th...

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Veröffentlicht in:	Brain sciences Jg. 9; H. 2; S. 18
Hauptverfasser:	Weber, Jayne Dixon, Smith, Elizabeth, Berry-Kravis, Elizabeth, Cadavid, Diego, Hessl, David, Erickson, Craig
Format:	Journal Article
Sprache:	Englisch
Veröffentlicht:	Switzerland MDPI AG 23.01.2019 MDPI
Schlagworte:	Age Anxiety Behavior Caregivers characteristics that have the greatest impact Child & adolescent psychiatry Cognitive ability Communication developmental disorders Families & family life FMR1 gene Fragile X syndrome Intellectual disabilities Pediatrics Proteins Qualitative research voice of the patient voice of the person United States > US characteristics that have the greatest impact voice of the person developmental disorders voice of the patient fragile X syndrome FMR1 gene
ISSN:	2076-3425, 2076-3425
Online-Zugang:	Volltext
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