Understanding Co‐Creation in a Research Partnership Programme Exploring Patient‐Driven Innovations: A Qualitative Longitudinal Study

ABSTRACT Background Research indicates that successful co‐creation depends on a shared understanding of co‐creation and its related concepts. However, it also shows that, in practice, views on co‐creation and how to do it differ. This study aims to explore how patient innovators and researchers in a...

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Bibliographic Details
Published in:Health expectations : an international journal of public participation in health care and health policy Vol. 27; no. 5; pp. e70003 - n/a
Main Authors: Jansson, Hanna, Luckhaus, Jamie L., Hasson, Henna, Mazzocato, Pamela, Stenfors, Terese, Wannheden, Carolina
Format: Journal Article
Language:English
Published: England John Wiley & Sons, Inc 01.10.2024
Wiley
Subjects:
Adult
Caregivers
co‐creation
co‐production
Data analysis
Data collection
Equality
Female
Humans
Innovations
Interviews
Interviews as Topic
Longitudinal Studies
Male
Medical research
Middle Aged
Participation
partnership research
Partnerships
patient and public involvement
patient author
Patient Participation
Patients
patient‐driven innovation
Qualitative analysis
Qualitative Research
Reflexivity
Researcher subject relations
Researchers
Understanding
Value creation
Sweden
partnership research
co‐creation
patient and public involvement
patient‐driven innovation
patient author
co‐production
ISSN:1369-6513, 1369-7625, 1369-7625
Online Access:Get full text
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Summary:ABSTRACT Background Research indicates that successful co‐creation depends on a shared understanding of co‐creation and its related concepts. However, it also shows that, in practice, views on co‐creation and how to do it differ. This study aims to explore how patient innovators and researchers in a partnership research programme understand co‐creation and how this understanding changes over time. Methods An explorative longitudinal qualitative study was conducted with the ‘Patients in the Driver's Seat’ partnership research programme. Fifty‐eight interviews were performed and analysed using a reflexive thematic approach. Findings Four different ways of understanding co‐creation were identified. These can be instrumentally conceptualized as themes using the inputs‐process‐outputs model: (1) combining different perspectives, experiences and backgrounds (inputs); (2) deliberately dynamic and exploratory (process); (3) striving for equity, not equality (process); and (4) diverse value creation, tangible and intangible (outputs). Together, these themes represent the varied understandings of co‐creation among partnership programme members. Conclusions Our study of patient innovators and researchers identified four distinct yet complementary understandings of co‐creation. The study suggests that co‐creation is the sum of its essential components, which can be divided into inputs, process, and outputs. Patient or Public Contribution This study, and the partnership programme it explored, aims to improve the relevance of research for patients and informal caregivers through an improved understanding of the concept of co‐creation within research on patient innovation. All patient innovators involved in the programme were invited, as interviewees and researchers, to contribute to the study design and data analysis.
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ISSN:1369-6513
1369-7625
1369-7625
DOI:10.1111/hex.70003