Big Data for Public Health Policy-Making: Policy Empowerment

Digitization is considered to radically transform healthcare. As such, with seemingly unlimited opportunities to collect data, it will play an important role in the public health policy-making process. In this context, health data cooperatives (HDC) are a key component and core element for public he...

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Vydané v:Public Health Genomics Ročník 20; číslo 6; s. 312 - 320
Hlavní autori: Mählmann, Laura, Reumann, Matthias, Evangelatos, Nikolaos, Brand, Angela
Médium: Journal Article
Jazyk:English
Vydavateľské údaje: Switzerland S. Karger AG 01.01.2017
Predmet:
and Organizing Microeconomic Data; Data Access
Big data analytics
c80 - "Data Collection and Data Estimation Methodology; Computer Programs: General"
c81 - "Methodology for Collecting
CARE
Cross-border healthcare
Data Collection and Data Estimation Methodology; Computer Programs: General
Data linkage
E-health
Estimating
Ethical and regulatory frameworks
Health data cooperatives
Health: Government Policy; Regulation; Public Health
Health: Other
i18 - "Health: Government Policy; Regulation; Public Health"
i19 - Health: Other
Methodology for Collecting
Prevention
Public health policies
Secondary use of data
Prevention
Cross-border healthcare
Big data analytics
E-health
Health data cooperatives
Secondary use of data
Ethical and regulatory frameworks
Data linkage
Public health policies
ISSN:1662-4246, 1662-8063, 1662-8063
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Popis
Shrnutí:Digitization is considered to radically transform healthcare. As such, with seemingly unlimited opportunities to collect data, it will play an important role in the public health policy-making process. In this context, health data cooperatives (HDC) are a key component and core element for public health policy-making and for exploiting the potential of all the existing and rapidly emerging data sources. Being able to leverage all the data requires overcoming the computational, algorithmic, and technological challenges that characterize today's highly heterogeneous data landscape, as well as a host of diverse regulatory, normative, governance, and policy constraints. The full potential of big data can only be realized if data are being made accessible and shared. Treating research data as a public good, creating HDC to empower citizens through citizen-owned health data, and allowing data access for research and the development of new diagnostics, therapies, and public health policies will yield the transformative impact of digital health. The HDC model for data governance is an arrangement, based on moral codes, that encourages citizens to participate in the improvement of their own health. This then enables public health institutions and policymakers to monitor policy changes and evaluate their impact and risk on a population level.
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ISSN:1662-4246
1662-8063
1662-8063
DOI:10.1159/000486587