Lessons learned during the process of reporting individual genomic results to participants of a population-based biobank

The return of individual genomic results (ROR) to research participants is still in its early phase, and insight on how individuals respond to ROR is scarce. Studies contributing to the evidence base for best practices are crucial before these can be established. Here, we describe a ROR procedure co...

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Bibliographic Details

Published in:	European journal of human genetics : EJHG Vol. 31; no. 9; pp. 1048 - 1056
Main Authors:	Leitsalu, Liis, Reigo, Anu, Palover, Marili, Nikopensius, Tiit, Läll, Kristi, Krebs, Kristi, Reisberg, Sulev, Mägi, Reedik, Kals, Mart, Alavere, Helene, Nõukas, Margit, Kolk, Anneli, Normet, Ivi, Tammesoo, Mari-Liis, Käärik, Ene, Puusepp, Mairo, Metsalu, Kristjan, Allik, Annely, Milani, Lili, Fischer, Krista, Tõnisson, Neeme, Metspalu, Andres
Format:	Journal Article
Language:	English
Published:	England Nature Publishing Group 01.09.2023
Subjects:	Biobanks Biological Specimen Banks Communication Genomics Humans
ISSN:	1018-4813, 1476-5438, 1476-5438
Online Access:	Get full text
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