Lessons learned during the process of reporting individual genomic results to participants of a population-based biobank

The return of individual genomic results (ROR) to research participants is still in its early phase, and insight on how individuals respond to ROR is scarce. Studies contributing to the evidence base for best practices are crucial before these can be established. Here, we describe a ROR procedure co...

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Vydané v:	European journal of human genetics : EJHG Ročník 31; číslo 9; s. 1048 - 1056
Hlavní autori:	Leitsalu, Liis, Reigo, Anu, Palover, Marili, Nikopensius, Tiit, Läll, Kristi, Krebs, Kristi, Reisberg, Sulev, Mägi, Reedik, Kals, Mart, Alavere, Helene, Nõukas, Margit, Kolk, Anneli, Normet, Ivi, Tammesoo, Mari-Liis, Käärik, Ene, Puusepp, Mairo, Metsalu, Kristjan, Allik, Annely, Milani, Lili, Fischer, Krista, Tõnisson, Neeme, Metspalu, Andres
Médium:	Journal Article
Jazyk:	English
Vydavateľské údaje:	England Nature Publishing Group 01.09.2023
Predmet:	Biobanks Biological Specimen Banks Communication Genomics Humans
ISSN:	1018-4813, 1476-5438, 1476-5438
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