Evaluation of Family Characteristics and Multiple Hospitalizations at the End of Life: Evidence from the Utah Population Database

Scant research has examined the relationship between family characteristics and end-of-life (EOL) outcomes despite the importance of family at the EOL. This study examined factors associated with the size and composition of family relationships on multiple EOL hospitalizations. Retrospective analysi...

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Vydáno v:Journal of palliative medicine Ročník 25; číslo 3; s. 376
Hlavní autoři: Tay, Djin L, Ornstein, Katherine A, Meeks, Huong, Utz, Rebecca L, Smith, Ken R, Stephens, Caroline, Hashibe, Mia, Ellington, Lee
Médium: Journal Article
Jazyk:angličtina
Vydáno: United States 01.03.2022
Témata:
Adult
Child
Death
Family Characteristics
Female
Hospice Care
Hospitalization
Humans
Infant
Retrospective Studies
Terminal Care
United States
Utah - epidemiology
United States
Utah
end-of-life
socioeconomic factors
caregivers
population health
ISSN:1557-7740, 1557-7740
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Shrnutí:Scant research has examined the relationship between family characteristics and end-of-life (EOL) outcomes despite the importance of family at the EOL. This study examined factors associated with the size and composition of family relationships on multiple EOL hospitalizations. Retrospective analysis of the Utah Population Database, a statewide population database using linked administrative records. We identified adults who died of natural causes in Utah, United States (  = 216,913) between 1998 and 2016 and identified adult first-degree family members (  = 743,874; spouses = 13.2%; parents = 3.6%; children = 51.7%; siblings = 31.5%). We compared demographic, socioeconomic, and death characteristics of decedents with and without first-degree family. Using logistic regression models adjusting for sex, age, race/ethnicity, marital status, comorbidity, and causes of death, we examined the association of first-degree family size and composition, on multiple hospitalizations in the last six months of life. Among decedents without documented first-degree family members in Utah (16.0%), 57.7% were female and 7 in 10 were older than 70 years. Nonmarried (aOR = 0.90, 95% CI = 0.88-0.92) decedents and decedents with children (aOR = 0.97, 95% CI = 0.94-0.99) were less likely to have multiple EOL hospitalizations. Family size was not associated with multiple EOL hospitalizations. First-degree family characteristics vary at the EOL. EOL care utilization may be influenced by family characteristics-in particular, presence of a spouse. Future studies should explore how the quality of family networks, as well as extended family, impacts other EOL characteristics such as hospice and palliative care use to better understand the EOL care experience.
Bibliografie:ObjectType-Article-1
SourceType-Scholarly Journals-1
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ISSN:1557-7740
1557-7740
DOI:10.1089/jpm.2021.0071