Qualitative Analysis of the Content Found in Online Discussion Boards for Urethral Stricture Disease and Urethroplasty

To describe the patient experience and chief concerns with urethroplasty to improve physician understanding and patient education. Online discussion boards allow patients with urethral stricture disease (USD) to connect with other USD patients. It is unknown how men use these web resources and what...

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Bibliographic Details
Published in:Urology (Ridgewood, N.J.) Vol. 130; pp. 155 - 161
Main Authors: Cedars, Benjamin E., Cohen, Andrew J., Fergus, Kirkpatrick B., Baradaran, Nima, Ndoye, Medina, Kamal, Puneet, Breyer, Benjamin N.
Format: Journal Article
Language:English
Published: United States Elsevier Inc 01.08.2019
Subjects:
Attitude to Health
Humans
Internet
Male
Patient Satisfaction
Qualitative Research
Self-Help Groups
Urethra - surgery
Urethral Stricture - surgery
Urologic Surgical Procedures, Male
ISSN:0090-4295, 1527-9995, 1527-9995
Online Access:Get full text
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Summary:To describe the patient experience and chief concerns with urethroplasty to improve physician understanding and patient education. Online discussion boards allow patients with urethral stricture disease (USD) to connect with other USD patients. It is unknown how men use these web resources and what information is available about urethroplasty. Three online forums featuring urethroplasty were identified by Google search. Thematic analysis categorized the content of posts using manually applied codes, with inter-rater reliability and descriptive statistics generated by Dedoose (Los Angeles, CA). A total of 140 unique posters contributed 553 posts to the forums. Posts were categorized as information support (n = 651), issues posturethroplasty (n = 470), own experience preurethroplasty (n = 336), feelings towards other posters (n = 312), what to expect posturethroplasty (n = 265), feelings after urethroplasty (n = 228), and considerations before urethroplasty (n = 134). Experience navigating the healthcare system with USD (n = 141) and weak urine stream (n = 70) were the most frequent preurethroplasty complaints. Postoperative pain (n = 164) was the most frequent issue. Patients expressed more positivity (n = 126) and satisfaction (n = 120) than negativity (n = 33) with urethroplasty. Patients participated in online discussions to share experiences with USD and urethroplasty, receive emotional support, and find answers. Men were more often satisfied than not with their urethroplasty outcomes, with 88% of postoperative feelings coded as positive or satisfied compared to negative. This study provides physicians with insight into the experiences of patients and how to best educate them.
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ISSN:0090-4295
1527-9995
1527-9995
DOI:10.1016/j.urology.2019.03.033