The Young Carers’ Journey: A Systematic Review and Meta Ethnography

Despite growing international interest, the caregiving body of literature lacks a recent understanding of young carers’ experiences and their contact with the health care system. We conducted a systematic review of qualitative studies to (1) synthesize more recent qualitative evidence on young carer...

Celý popis

Uloženo v:
Podrobná bibliografie
Vydáno v:International journal of environmental research and public health Ročník 19; číslo 10; s. 5826
Hlavní autoři: Saragosa, Marianne, Frew, Melissa, Hahn-Goldberg, Shoshana, Orchanian-Cheff, Ani, Abrams, Howard, Okrainec, Karen
Médium: Journal Article
Jazyk:angličtina
Vydáno: Switzerland MDPI AG 10.05.2022
MDPI
Témata:
Adolescent
Anthropology, Cultural
Caregivers
Caregivers - psychology
Chronic illnesses
Delivery of Health Care
Empirical Research
Ethnography
Families & family life
Humans
Mental disorders
Mental health
Peers
Qualitative Research
Roles
Subject heading schemes
Systematic Review
Young adults
meta-ethnography
qualitative
caregiving
youth
young carer
ISSN:1660-4601, 1661-7827, 1660-4601
On-line přístup:Získat plný text
Tagy: Přidat tag
Žádné tagy, Buďte první, kdo vytvoří štítek k tomuto záznamu!
Popis
Shrnutí:Despite growing international interest, the caregiving body of literature lacks a recent understanding of young carers’ experiences and their contact with the health care system. We conducted a systematic review of qualitative studies to (1) synthesize more recent qualitative evidence on young carers’ experience, and (2) to identify how these young carers interact with the health care system in their caregiving role. Using a meta-ethnographic synthesis, a total of 28 empirical studies met inclusion. Key findings helped inform an overarching framework of the experience of young carers as illustrated by a journey map. The journey map is a visual depiction of the stages these young carers go through when in a caregiving role framed by three themes: (1) encountering caregiving; (2) being a young caregiver, and (3) moving beyond caregiving. The caregiving experience is perceived by young people as challenging and complex, which could be improved with more informational navigation and emotional support. Understanding these experiences provides insight into gaps in health services and potential solutions that align with the stages outlined in the journey map.
Bibliografie:ObjectType-Article-2
SourceType-Scholarly Journals-1
content type line 14
ObjectType-Feature-3
ObjectType-Evidence Based Healthcare-1
ObjectType-Article-1
ObjectType-Feature-2
ObjectType-Review-3
content type line 23
ObjectType-Undefined-4
ISSN:1660-4601
1661-7827
1660-4601
DOI:10.3390/ijerph19105826