Privacy Protective Research Facilitating Ethically Responsible Access to Administrative Data
Companies and government entities collect substantial amounts of administrative data through the Internet; mobile communications; and a vast infrastructure of devices and sensors embedded in healthcare facilities, retail outlets, public transportation, social networks, workplaces, and homes. They us...
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| Published in: | The Annals of the American Academy of Political and Social Science Vol. 675; no. 1; pp. 46 - 66 |
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| Main Authors: | , , |
| Format: | Journal Article |
| Language: | English |
| Published: |
Los Angeles, CA
SAGE Publishing
01.01.2018
SAGE Publications SAGE PUBLICATIONS, INC |
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| ISSN: | 0002-7162, 1552-3349 |
| Online Access: | Get full text |
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| Abstract | Companies and government entities collect substantial amounts of administrative data through the Internet; mobile communications; and a vast infrastructure of devices and sensors embedded in healthcare facilities, retail outlets, public transportation, social networks, workplaces, and homes. They use administrative data to test new products and services, improve existing offerings, conduct research, and foster innovation. However, the lack of a clear legal framework and ethical guidelines for use of administrative data jeopardizes the value of important research. Concerns over legal impediments and ethical restrictions threaten to diminish productive collaboration between researchers and private sector businesses. This article provides strategies for organizations to minimize risks of reidentification and privacy violations for individual data subjects. In addition, it suggests that privacy and ethical concerns would best be managed by supporting the development of administrative data centers to lower transaction costs and increase the reproducibility of research conducted on administrative data. |
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| AbstractList | Companies and government entities collect substantial amounts of administrative data through the Internet; mobile communications; and a vast infrastructure of devices and sensors embedded in healthcare facilities, retail outlets, public transportation, social networks, workplaces, and homes. They use administrative data to test new products and services, improve existing offerings, conduct research, and foster innovation. However, the lack of a clear legal framework and ethical guidelines for use of administrative data jeopardizes the value of important research. Concerns over legal impediments and ethical restrictions threaten to diminish productive collaboration between researchers and private sector businesses. This article provides strategies for organizations to minimize risks of reidentification and privacy violations for individual data subjects. In addition, it suggests that privacy and ethical concerns would best be managed by supporting the development of administrative data centers to lower transaction costs and increase the reproducibility of research conducted on administrative data. |
| Author | GOROFF, DANIEL TENE, OMER POLONETSKY, JULES |
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| Cites_doi | 10.1093/idpl/ipu033 10.1200/JOP.2015.010504 10.1007/978-3-540-25955-8_22 10.1037/a0033242 10.2139/ssrn.2665148 10.1126/science.aaa3483 10.1093/oso/9780195078244.001.0001 10.1201/b14764 10.1017/CBO9781107590205.018 10.1257/aer.102.3.65 10.1007/11681878_14 10.1561/0400000042 10.1145/1536414.1536440 10.1126/science.1243089. 10.1145/2213977.2214086 |
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| SubjectTerms | Big Data Companies Computer mediated communication Computer networks Ethics Health care Health services Infrastructure Innovations Internet Privacy Private sector Public transportation Reproducibility Research ethics Section I: Privacy and Confidentiality Social networks Strategies Transaction costs Violations Workplaces |
| Subtitle | Facilitating Ethically Responsible Access to Administrative Data |
| Title | Privacy Protective Research |
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