Privacy Protective Research Facilitating Ethically Responsible Access to Administrative Data

Companies and government entities collect substantial amounts of administrative data through the Internet; mobile communications; and a vast infrastructure of devices and sensors embedded in healthcare facilities, retail outlets, public transportation, social networks, workplaces, and homes. They us...

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Veröffentlicht in:The Annals of the American Academy of Political and Social Science Jg. 675; H. 1; S. 46 - 66
Hauptverfasser: GOROFF, DANIEL, POLONETSKY, JULES, TENE, OMER
Format: Journal Article
Sprache:Englisch
Veröffentlicht: Los Angeles, CA SAGE Publishing 01.01.2018
SAGE Publications
SAGE PUBLICATIONS, INC
Schlagworte:
Big Data
Companies
Computer mediated communication
Computer networks
Ethics
Health care
Health services
Infrastructure
Innovations
Internet
Privacy
Private sector
Public transportation
Reproducibility
Research ethics
Section I: Privacy and Confidentiality
Social networks
Strategies
Transaction costs
Violations
Workplaces
data protection
privacy
administrative data
big data
ethics
data research
ISSN:0002-7162, 1552-3349
Online-Zugang:Volltext
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Zusammenfassung:Companies and government entities collect substantial amounts of administrative data through the Internet; mobile communications; and a vast infrastructure of devices and sensors embedded in healthcare facilities, retail outlets, public transportation, social networks, workplaces, and homes. They use administrative data to test new products and services, improve existing offerings, conduct research, and foster innovation. However, the lack of a clear legal framework and ethical guidelines for use of administrative data jeopardizes the value of important research. Concerns over legal impediments and ethical restrictions threaten to diminish productive collaboration between researchers and private sector businesses. This article provides strategies for organizations to minimize risks of reidentification and privacy violations for individual data subjects. In addition, it suggests that privacy and ethical concerns would best be managed by supporting the development of administrative data centers to lower transaction costs and increase the reproducibility of research conducted on administrative data.
Bibliographie:ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
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ISSN:0002-7162
1552-3349
DOI:10.1177/0002716217742605