Self-Care Technologies and Collaboration

The self-management of a chronic condition is a collaborative activity, performed by patients and carers. However, to date, self-care technologies have been mostly designed for individual use. This article uses a case study of people living with Parkinson's disease to (a) illustrate how patient...

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Bibliographic Details
Published in:International journal of human-computer interaction Vol. 31; no. 12; pp. 869 - 881
Main Authors: Nunes, Francisco, Fitzpatrick, Geraldine
Format: Journal Article
Language:English
Published: Norwood Taylor & Francis 02.12.2015
Lawrence Erlbaum Associates, Inc
Subjects:
Activities of daily living
Adaptive technology
Caregivers
Case studies
Chronic conditions
Chronic illnesses
Collaboration
Construction
Cooperation
Design engineering
Disease control
Everyday life
Human-computer interaction
Parkinson's disease
Patients
Qualitative research
Quality of life
Self care
Selfmanagement
Technology
Technology assessment
ISSN:1044-7318, 1532-7590, 1044-7318
Online Access:Get full text
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Summary:The self-management of a chronic condition is a collaborative activity, performed by patients and carers. However, to date, self-care technologies have been mostly designed for individual use. This article uses a case study of people living with Parkinson's disease to (a) illustrate how patients and carers collaborate in self-management, (b) discuss the reasons why self-care technology is designed for individual use, and (c) explore the implications of recognizing collaborations for the design of self-care technologies. This work is based on a qualitative study with interviews and observations with people living with Parkinson's. The analysis illustrates how people living with Parkinson's collaborate in self-care to build a good life. In particular, it exemplifies how the complex interplay of actions and of patients and carers enables the different self-care activities to take place. To further integrate self-care technology in everyday life, designers need to consider collaborations when studying the context, conceptualizing a technology, and planning an evaluation.
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ISSN:1044-7318
1532-7590
1044-7318
DOI:10.1080/10447318.2015.1067498