Redefining a ‘new normality’: A hermeneutic phenomenological study of the experiences of patients with chronic heart failure

Aim To explore the perception of normality in life experienced by patients with chronic heart failure. Design A hermeneutic phenomenological study was conducted. Methods Individual conversational interviews were held with 20 outpatients with chronic heart failure between March 2014–July 2015. Van Ma...

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Vydané v:Journal of advanced nursing Ročník 76; číslo 1; s. 275 - 286
Hlavní autori: Olano‐Lizarraga, Maddi, Zaragoza‐Salcedo, Amparo, Martín‐Martín, Jesús, Saracíbar‐Razquin, Maribel
Médium: Journal Article
Jazyk:English
Vydavateľské údaje: England Wiley Subscription Services, Inc 01.01.2020
Predmet:
Beta blockers
chronic heart failure
Conversation
Data analysis
Exegesis & hermeneutics
Experience
Family roles
Heart failure
hermeneutic phenomenology
Illnesses
Life satisfaction
living with
Normality
Normalization
Nursing
Occupational roles
Outpatients
Patients
Perceptions
Phenomenology
Qualitative research
Satisfaction
Van Manen
Well being
living with
chronic heart failure
nursing
Van Manen
normalization
hermeneutic phenomenology
ISSN:0309-2402, 1365-2648, 1365-2648
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Shrnutí:Aim To explore the perception of normality in life experienced by patients with chronic heart failure. Design A hermeneutic phenomenological study was conducted. Methods Individual conversational interviews were held with 20 outpatients with chronic heart failure between March 2014–July 2015. Van Manen's phenomenology of practice method was used for data analysis. Results From the analysis, four main themes emerged: (a) Accepting my new situation; (b) Experiencing satisfaction with life; (c) Continuing with my family, social and work roles; and (d) Hiding my illness from others. Conclusions The present study makes a novel contribution to understanding the importance of the perception of normality in the lives of patients with chronic heart failure. It was found that patients need to incorporate this health experience into their lives and reach a ‘new normal’, thus achieving well‐being. Several factors were identified that can help promote this perception in their lives; therefore, nursing interventions should be designed to help develop scenarios encouraging this normalization process. Impact Although the implications of having a sense of normality or experiencing ‘normalization’ of the illness process in life have been studied in other chronic patient populations, no studies to date have examined how patients with chronic heart failure experience this phenomenon in their lives. For the first time, the results of this research prove that the perception of normality is a key aspect in the experience of living with chronic heart failure. 目的: 探讨慢性心力衰竭患者对生活常态的认知。 设计 进行诠释现象学研究。 方法 2014年3月至2015年7月对20例慢性心力衰竭门诊患者进行单独访谈。数据分析采用Van Manen的现象学实践方法。 结果 分析得出四个主题:(a)接受新环境;(b)体验对生活的满意;(c)继续担任其家庭、社会和工作角色;(d)隐藏病情。 结论 本研究对理解慢性心力衰竭患者生活中正常状态的重要性做出了新的贡献。研究发现,患者需要将这种健康体验融入其生活并达到一种“新常态”,从而获得幸福。有几个因素可以帮助他们在生活中提升这种认知;因此,护理干预的设计应有助于开发鼓励这一正常化过程的情景。 影响 虽然在其他慢性病患者中已经研究了在生活中有正常感觉或经历疾病过程“正常化”的含义,但迄今为止还没有研究调查慢性心力衰竭患者在生活中如何经历这种现象。本研究的结果首次证明,正常的感觉是慢性心力衰竭患者生活经验中的一个关键方面。
Bibliografia:Funding information
This work was funded by the Research Plan of the Universidad de Navarra (Plan de Investigación de la Universidad de Navarra, PIUNA).
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ISSN:0309-2402
1365-2648
1365-2648
DOI:10.1111/jan.14237