Genetic databases Socio-ethical issues in the collection and use of DNA

Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical debates in the fields of sociology, anthropology and leg...

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Hlavní autoři: Tutton, Richard, Corrigan, Oonagh
Médium: E-kniha Kniha
Jazyk:angličtina
Vydáno: London Routledge 2004
Taylor and Francis
Taylor & Francis Group
Vydání:1
Témata:
Amino acid sequence
Bioinformatics
Biotechnology
Citizen participation
Data processing
Databases, Genetic > ethics
DNA
DNA data banks
Genetics
Genomics
Informed Consent
Informed consent (Medical law)
Medical ethics
New Genetics
Nucleotide sequence
Sociology of Health and Illness
trust
icelandic
PXE International
National DNA Database
Non-therapeutic Research
UK Medical Research Council
UK House
issues
Informed Consent Procedures
Human Genetic Databases
Informed Consent
Medical Biobank
Population Collection
socio-ethical
Clinical Drug Trials
UK Drug Company
biobank
sector
informed
Icelandic Health Sector Database
Genetic Databases
DNA Bank
health
Estonian Genome Project
consent
DNA Sample
Health Sector Database
ALSPAC Study
Public Engagement
Sensitive Information
UK's National Health Service
Mother's Questionnaire
UK Biobank
wellcome
Human Biological Material
ISBN:9780415316798, 0415316790, 9780415316804, 0415316804
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Obsah:
  • Intro -- Genetic databases Socio-ethical issues in the collection and use of DNA -- Copyright -- Contents -- Foreword -- Contributors -- Acknowledgements -- Chapter 1 Introduction: public participation in genetic databases -- Chapter 2 Person, property and gift: exploring languages of tissue donation to biomedical research -- Chapter 3 Blood donation for genetic research: what can we learn from donors' narratives? -- Chapter 4 Levels and styles of participation in genetic databases: a case study of the North Cumbria Community Genetics Project -- Chapter 5 Informed consent: the contradictory ethical safeguards in pharmacogenetics -- Chapter 6 Ambiguous gifts: public anxiety, informed consent and biobanks -- Chapter 7 Abandoning informed consent: the case of genetic research in population collections -- Chapter 8 Children's participation in genetic epidemiology: consent and control -- Chapter 9 'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections? -- Chapter 10 Tissue collection and the pharmaceutical industry: investigating corporate biobanks -- Index