Genetic databases Socio-ethical issues in the collection and use of DNA

Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical debates in the fields of sociology, anthropology and leg...

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Podrobná bibliografie
Hlavní autoři: Tutton, Richard, Corrigan, Oonagh
Médium: E-kniha Kniha
Jazyk:angličtina
Vydáno: London Routledge 2004
Taylor and Francis
Taylor & Francis Group
Vydání:1
Témata:
Amino acid sequence
Bioinformatics
Biotechnology
Citizen participation
Data processing
Databases, Genetic > ethics
DNA
DNA data banks
Genetics
Genomics
Informed Consent
Informed consent (Medical law)
Medical ethics
New Genetics
Nucleotide sequence
Sociology of Health and Illness
trust
icelandic
PXE International
National DNA Database
Non-therapeutic Research
UK Medical Research Council
UK House
issues
Informed Consent Procedures
Human Genetic Databases
Informed Consent
Medical Biobank
Population Collection
socio-ethical
Clinical Drug Trials
UK Drug Company
biobank
sector
informed
Icelandic Health Sector Database
Genetic Databases
DNA Bank
health
Estonian Genome Project
consent
DNA Sample
Health Sector Database
ALSPAC Study
Public Engagement
Sensitive Information
UK's National Health Service
Mother's Questionnaire
UK Biobank
wellcome
Human Biological Material
ISBN:9780415316798, 0415316790, 9780415316804, 0415316804
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Popis
Shrnutí:Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical debates in the fields of sociology, anthropology and legal studies, the contributors to this book challenge the prevailing orthodoxy of informed consent and explore the relationship between personal privacy and the public good. They also consider the multiple meanings attached to human tissue and the role of public consultations and commercial involvement in the creation and use of genetic databases. The authors argue that policy and regulatory frameworks produce a representation of participation that is often at odds with the experiences and understandings of those taking part. The findings present a serious challenge for public policy to provide mechanisms to safeguard the welfare of individuals participating in genetic databases.
Bibliografie:Includes bibliographical references and index
SourceType-Books-1
ObjectType-Book-1
content type line 7
ISBN:9780415316798
0415316790
9780415316804
0415316804
DOI:10.4324/9780203577929