Zobraziť v EDS

Meeting the informational needs of people with advanced breast cancer: a global expert review and call-to-action for 2025–2035 (Goal 6)

Uložené v:
Podrobná bibliografia
Názov: Meeting the informational needs of people with advanced breast cancer: a global expert review and call-to-action for 2025–2035 (Goal 6)
Autori: Anna Cabanes, Jenny Gilchrist, Marzia Zambon, Maya Gilbert, Alexandra Lewis, Georgia Attfield, Fatima Cardoso
Zdroj: Breast, Vol 84, Iss , Pp 104611- (2025)
Informácie o vydavateľovi: Elsevier, 2025.
Rok vydania: 2025
Zbierka: LCC:Neoplasms. Tumors. Oncology. Including cancer and carcinogens
Predmety: Advanced breast cancer, Informational needs, Education, Disparities, Digital literacy, Neoplasms. Tumors. Oncology. Including cancer and carcinogens, RC254-282
Popis: For people living with advanced breast cancer (ABC), the complexities of making treatment decisions, adhering to medication regimens, and balancing the social and personal aspects of the disease can be overwhelming. People with ABC need comprehensive information and resources to understand their disease, prognosis, and treatment options. However, this information is often difficult to access, interpret or navigate, leaving many feeling confused, frustrated and helpless.This manuscript evaluates the global ABC information landscape and its evolution since 2015, it analyzes the ongoing challenges faced by people with ABC, and outlines recommendations for the ABC community over the next decade. It summarizes research conducted for the ABC Global Alliance's Global Decade Report 2.0. The main findings are: a) The availability of ABC information has increased, but topics remain limited; b) ABC information from healthcare professionals is often limited to clinical topics; c) Patient advocacy groups are now crucial, trusted sources of ABC information; d) Online ABC information presents both opportunities and challenges; e) Global disparities in access to some topics of ABC information persist.The findings from the ABC Global Alliance's Global Decade Report 2.0 have informed the development of a new ABC Global Charter. The ABC Global Charter 2.0 defines ten new achievable and measurable goals for the decade 2025–2035, aiming at improving the lives of people living with ABC worldwide.
Druh dokumentu: article
Popis súboru: electronic resource
Jazyk: English
ISSN: 1532-3080
Relation: http://www.sciencedirect.com/science/article/pii/S0960977625006289; https://doaj.org/toc/1532-3080
DOI: 10.1016/j.breast.2025.104611
Prístupová URL adresa: https://doaj.org/article/6218ddb7ad6844edb69d5e679f6b63d9
Prístupové číslo: edsdoj.6218ddb7ad6844edb69d5e679f6b63d9
Databáza: Directory of Open Access Journals
Popis
Abstrakt:For people living with advanced breast cancer (ABC), the complexities of making treatment decisions, adhering to medication regimens, and balancing the social and personal aspects of the disease can be overwhelming. People with ABC need comprehensive information and resources to understand their disease, prognosis, and treatment options. However, this information is often difficult to access, interpret or navigate, leaving many feeling confused, frustrated and helpless.This manuscript evaluates the global ABC information landscape and its evolution since 2015, it analyzes the ongoing challenges faced by people with ABC, and outlines recommendations for the ABC community over the next decade. It summarizes research conducted for the ABC Global Alliance's Global Decade Report 2.0. The main findings are: a) The availability of ABC information has increased, but topics remain limited; b) ABC information from healthcare professionals is often limited to clinical topics; c) Patient advocacy groups are now crucial, trusted sources of ABC information; d) Online ABC information presents both opportunities and challenges; e) Global disparities in access to some topics of ABC information persist.The findings from the ABC Global Alliance's Global Decade Report 2.0 have informed the development of a new ABC Global Charter. The ABC Global Charter 2.0 defines ten new achievable and measurable goals for the decade 2025–2035, aiming at improving the lives of people living with ABC worldwide.
ISSN:15323080
DOI:10.1016/j.breast.2025.104611