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The purpose of an individual care plan in pediatric palliative care according to healthcare professionals: a qualitative study: a qualitative study

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Název: The purpose of an individual care plan in pediatric palliative care according to healthcare professionals: a qualitative study: a qualitative study
Autoři: Joren, C. Y., Kars, M. C., Kremer, L. C.M., van Dijk, J. C., Habing, A. M., Tijs, A. M., Trampe, A. A., Verhagen, A. A.E., Aris-Meijer, J. L.
Přispěvatelé: Palliatieve Zorg, Cancer, Child Health, UMC Utrecht Holding, Zorg en O&O
Zdroj: BMC Palliat Care
BMC Palliative Care, Vol 23, Iss 1, Pp 1-6 (2024)
Informace o vydavateli: Springer Science and Business Media LLC, 2024.
Rok vydání: 2024
Témata: Palliative Care/methods, Male, Adult, Individual care plan, Research, Health Personnel, Palliative Care, RC952-1245, General Medicine, Focus Groups, Middle Aged, Pediatrics, Patient Care Planning, Pediatrics/methods, Special situations and conditions, Humans, Focus Groups/methods, Female, Pediatric palliative care, Child, Health Personnel/psychology, Shared decision-making, Qualitative Research
Popis: To ensure high-quality pediatric palliative care (PPC) and enable healthcare professionals (HCPs) to provide person-centered care for the individual child with a life-limiting or life-threatening illness and their family, the Individual Care Plan (ICP) for PPC was developed. However, in practice, the ICP for PPC is not used for all children in need of PPC. Insight into why, for which problem and for which children HCPs wish to use an ICP in PPC is therefore necessary to assure that the ICP can be fully implemented in practice.Two semi-structured focus group interviews were held with 15 experienced healthcare professionals in PPC. Data were thematically analyzed.Participants wish to use an ICP to collaboratively establish a plan with parents for the current and future care and treatment of the child. By doing so, they hope to achieve coordination and continuity of care, to achieve shared decision-making, and to support parents and other healthcare professionals in the care of the child. Participants think the ICP could also be used in the care for children with complex chronic conditions.The purposes for which healthcare professionals wish to use an ICP in PPC are broader than the purpose for which the ICP for PPC was developed. Future research should focus on whether the use of an ICP in PPC practice can achieve these purposes.
Druh dokumentu: Article
Other literature type
Popis souboru: application/pdf
Jazyk: English
ISSN: 1472-684X
DOI: 10.1186/s12904-024-01569-2
Přístupová URL adresa: https://pubmed.ncbi.nlm.nih.gov/39367385
https://doaj.org/article/32a3f5464ef144a0beb41d2cc977562d
https://hdl.handle.net/11370/745e7c67-7299-44cb-b5c0-c82a598db2e2
https://doi.org/10.1186/s12904-024-01569-2
https://research.rug.nl/en/publications/745e7c67-7299-44cb-b5c0-c82a598db2e2
https://dspace.library.uu.nl/handle/1874/458418
Rights: CC BY NC ND
Přístupové číslo: edsair.doi.dedup.....deb1af8ef5bf9b20341275c2db958e3e
Databáze: OpenAIRE
Popis
Abstrakt:To ensure high-quality pediatric palliative care (PPC) and enable healthcare professionals (HCPs) to provide person-centered care for the individual child with a life-limiting or life-threatening illness and their family, the Individual Care Plan (ICP) for PPC was developed. However, in practice, the ICP for PPC is not used for all children in need of PPC. Insight into why, for which problem and for which children HCPs wish to use an ICP in PPC is therefore necessary to assure that the ICP can be fully implemented in practice.Two semi-structured focus group interviews were held with 15 experienced healthcare professionals in PPC. Data were thematically analyzed.Participants wish to use an ICP to collaboratively establish a plan with parents for the current and future care and treatment of the child. By doing so, they hope to achieve coordination and continuity of care, to achieve shared decision-making, and to support parents and other healthcare professionals in the care of the child. Participants think the ICP could also be used in the care for children with complex chronic conditions.The purposes for which healthcare professionals wish to use an ICP in PPC are broader than the purpose for which the ICP for PPC was developed. Future research should focus on whether the use of an ICP in PPC practice can achieve these purposes.
ISSN:1472684X
DOI:10.1186/s12904-024-01569-2