Health policy counterpublics: Enacting collective resistances to US molecular HIV surveillance and cluster detection and response programs
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| Title: | Health policy counterpublics: Enacting collective resistances to US molecular HIV surveillance and cluster detection and response programs |
|---|---|
| Authors: | Stephen Molldrem, Anthony K J Smith |
| Source: | Soc Stud Sci |
| Publisher Information: | SAGE Publications, 2023. |
| Publication Year: | 2023 |
| Subject Terms: | anzsrc-for: 2202 History and Philosophy of Specific Fields, anzsrc-for: 4401 Anthropology, HIV Infections, publics, and research governance, policy studies, social theory, 8.3 Policy, anzsrc-for: 5002 History and philosophy of specific fields, social movements, Clinical Research, Behavioral and Social Science, Humans, anzsrc-for: 44 Human Society, Public Health Surveillance, 4407 Policy and Administration, anzsrc-for: 4410 Sociology, 44 Human Society, pathogen genomics, Health Policy, Politics, 3 Good Health and Well Being, Articles, Health Services, anzsrc-for: 4407 Policy and Administration, 16. Peace & justice, ethics, United States, anzsrc-for: 1608 Sociology, 3. Good health, Infectious Diseases, Sexually Transmitted Infections, HIV/AIDS, Generic health relevance |
| Description: | Health policies and the problems they constitute are deeply shaped by multiple publics. In this article we conceptualize health policy counterpublics: temporally bounded socio-political forms that aim to cultivate particular modes of conduct, generally to resist trajectories set by arms of the state. These counterpublics often emerge from existing social movements and involve varied forms of activism and advocacy. We examine a health policy counterpublic that has arisen in response to new forms of HIV public health surveillance by drawing on public documents and interview data from 2021 with 26 stakeholders who were critical of key policy developments. Since 2018, the national rollout of molecular HIV surveillance (MHS) and cluster detection and response (CDR) programs in the United States has produced sustained controversies among HIV stakeholders, including among organized networks of people living with HIV. This article focuses on how a health policy counterpublic formed around MHS/CDR and how constituents problematized the policy agenda set in motion by federal health agencies, including in relation to data ethics, the meaningful involvement of affected communities, informed consent, the digitization of health systems, and HIV criminalization. Although familiar problems in HIV policymaking, concerns about these issues have been reconfigured in response to the new sociotechnical milieu proffered by MHS/CDR, generating new critical positions aiming to remake public health. Critical attention to the scenes within which health policy controversies play out ought to consider how (counter)publics are made, how problems are constituted, and the broader social movement dynamics and activist resources drawn upon to contest and reimagine policymaking in public life. |
| Document Type: | Article Other literature type |
| File Description: | application/pdf |
| Language: | English |
| ISSN: | 1460-3659 0306-3127 |
| DOI: | 10.1177/03063127231211933 |
| Access URL: | https://pubmed.ncbi.nlm.nih.gov/38054426 |
| Rights: | CC BY URL: http://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (http://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (http://us.sagepub.com/en-us/nam/open-access-at-sage). |
| Accession Number: | edsair.doi.dedup.....d4b3a7c7ad00369a144b7a81ad0a9409 |
| Database: | OpenAIRE |
Nájsť tento článok vo Web of Science | Abstract: | Health policies and the problems they constitute are deeply shaped by multiple publics. In this article we conceptualize health policy counterpublics: temporally bounded socio-political forms that aim to cultivate particular modes of conduct, generally to resist trajectories set by arms of the state. These counterpublics often emerge from existing social movements and involve varied forms of activism and advocacy. We examine a health policy counterpublic that has arisen in response to new forms of HIV public health surveillance by drawing on public documents and interview data from 2021 with 26 stakeholders who were critical of key policy developments. Since 2018, the national rollout of molecular HIV surveillance (MHS) and cluster detection and response (CDR) programs in the United States has produced sustained controversies among HIV stakeholders, including among organized networks of people living with HIV. This article focuses on how a health policy counterpublic formed around MHS/CDR and how constituents problematized the policy agenda set in motion by federal health agencies, including in relation to data ethics, the meaningful involvement of affected communities, informed consent, the digitization of health systems, and HIV criminalization. Although familiar problems in HIV policymaking, concerns about these issues have been reconfigured in response to the new sociotechnical milieu proffered by MHS/CDR, generating new critical positions aiming to remake public health. Critical attention to the scenes within which health policy controversies play out ought to consider how (counter)publics are made, how problems are constituted, and the broader social movement dynamics and activist resources drawn upon to contest and reimagine policymaking in public life. |
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| ISSN: | 14603659 03063127 |
| DOI: | 10.1177/03063127231211933 |