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A short scale to measure health-related quality of life after traumatic brain injury in children and adolescents (QOLIBRI-OS-KID/ADO): psychometric properties and German reference values

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Název: A short scale to measure health-related quality of life after traumatic brain injury in children and adolescents (QOLIBRI-OS-KID/ADO): psychometric properties and German reference values
Autoři: Marina Zeldovich, Leonie Krol, Inga K. Koerte, Katrin Cunitz, Matthias Kieslich, Marlene Henrich, Knut Brockmann, Anna Buchheim, Michael Lendt, Christian Auer, Axel Neu, Joenna Driemeyer, Ulrike Wartemann, Claudius Thomé, Daniel Pinggera, Steffen Berweck, Michaela V. Bonfert, Joachim Suss, Holger Muehlan, Nicole von Steinbuechel
Přispěvatelé: Zeldovich, Marina, Krol, Leonie, Koerte, Inga K., Cunitz, Katrin, Kieslich, Matthias, Henrich, Marlene, Brockmann, Knut, Buchheim, Anna, Lendt, Michael, Auer, Christian, von Steinbuechel, Nicole
Zdroj: Qual Life Res
Informace o vydavateli: Springer Science and Business Media LLC, 2024.
Rok vydání: 2024
Témata: Male, Psychometrics, Adolescent, Reproducibility of Results, Article, 3. Good health, 03 medical and health sciences, 0302 clinical medicine, Reference Values, Germany, Surveys and Questionnaires, Brain Injuries, Traumatic, Adolescent [MeSH], Female [MeSH], Surveys and Questionnaires/standards [MeSH], Reference Values [MeSH], Humans [MeSH], Reference values, Brain Injuries, Traumatic/psychology [MeSH], Quality of Life/psychology [MeSH], Pediatric traumatic brain injury (pTBI), Psychometrics [MeSH], Health-related quality of life (HRQoL), Male [MeSH], Reproducibility of Results [MeSH], Germany [MeSH], Patient-reported outcome measure (PROM), Child [MeSH], Quality of Life, Humans, Female, Child
Popis: Purpose The impact of pediatric traumatic brain injury (pTBI) on health-related quality of life (HRQoL) in children and adolescents remains understudied. Short scales have some advantages in terms of economy and administration over longer scales, especially in younger children. The aim of the present study is to psychometrically evaluate the six-item German version of the QOLIBRI-OS-KID/ADO scale for children and adolescents. In addition, reference values from a general German pediatric population are obtained to assist clinicians and researchers in the interpretation of HRQoL after pTBI. Methods A total of 297 individuals after TBI and 1997 from a general population sample completed the questionnaire. Reliability, validity, and comparability of the assessed construct were examined. Results The questionnaire showed satisfactory reliability (α = 0.75 and ω = 0.81 and α = 0.85 and ω = 0.86 for the TBI and general population samples, respectively). The QOLIBRI-OS-KID/ADO was highly correlated with its long version (R2 = 67%) and showed an overlap with generic HRQoL (R2 = 55%) in the TBI sample. The one-dimensional factorial structure could be replicated and tested for measurement invariance between samples, indicating a comparable HRQoL construct assessment. Therefore, reference values and cut-offs indicating clinically relevant impairment could be provided using percentiles stratified by factors significantly associated with the total score in the regression analyses (i.e., age group and gender). Conclusion In combination with the cut-offs, the QOLIBRI-OS-KID/ADO provides a cost-effective screening tool, complemented by interpretation guidelines, which may help to draw clinical conclusions and indications such as further administration of a longer version of the instrument to gain more detailed insight into impaired HRQoL domains or omission of further steps in the absence of an indication.
Druh dokumentu: Article
Other literature type
Jazyk: English
ISSN: 1573-2649
0962-9343
DOI: 10.1007/s11136-024-03764-3
DOI: 10.21203/rs.3.rs-3953013/v1
Přístupová URL adresa: https://pubmed.ncbi.nlm.nih.gov/39215856
https://resolver.sub.uni-goettingen.de/purl?gro-2/145533
https://repository.publisso.de/resource/frl:6522102
Rights: CC BY
Přístupové číslo: edsair.doi.dedup.....c3c2f7ab839a0eda63260ff0a764a13a
Databáze: OpenAIRE
Popis
Abstrakt:Purpose The impact of pediatric traumatic brain injury (pTBI) on health-related quality of life (HRQoL) in children and adolescents remains understudied. Short scales have some advantages in terms of economy and administration over longer scales, especially in younger children. The aim of the present study is to psychometrically evaluate the six-item German version of the QOLIBRI-OS-KID/ADO scale for children and adolescents. In addition, reference values from a general German pediatric population are obtained to assist clinicians and researchers in the interpretation of HRQoL after pTBI. Methods A total of 297 individuals after TBI and 1997 from a general population sample completed the questionnaire. Reliability, validity, and comparability of the assessed construct were examined. Results The questionnaire showed satisfactory reliability (α = 0.75 and ω = 0.81 and α = 0.85 and ω = 0.86 for the TBI and general population samples, respectively). The QOLIBRI-OS-KID/ADO was highly correlated with its long version (R2 = 67%) and showed an overlap with generic HRQoL (R2 = 55%) in the TBI sample. The one-dimensional factorial structure could be replicated and tested for measurement invariance between samples, indicating a comparable HRQoL construct assessment. Therefore, reference values and cut-offs indicating clinically relevant impairment could be provided using percentiles stratified by factors significantly associated with the total score in the regression analyses (i.e., age group and gender). Conclusion In combination with the cut-offs, the QOLIBRI-OS-KID/ADO provides a cost-effective screening tool, complemented by interpretation guidelines, which may help to draw clinical conclusions and indications such as further administration of a longer version of the instrument to gain more detailed insight into impaired HRQoL domains or omission of further steps in the absence of an indication.
ISSN:15732649
09629343
DOI:10.1007/s11136-024-03764-3