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Learning from experience: does providing end-of-life care support for relatives boost personal end-of-life health literacy?

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Názov: Learning from experience: does providing end-of-life care support for relatives boost personal end-of-life health literacy?
Autori: Meier, C., Wieczorek, M., Vilpert, S., Borrat-Besson, C., Jox, R.J., Maurer, J.
Zdroj: BMC Palliat Care
BMC Palliative Care, Vol 24, Iss 1, Pp 1-9 (2025)
BMC palliative care, vol. 24, no. 1, pp. 6
Informácie o vydavateľovi: Springer Science and Business Media LLC, 2025.
Rok vydania: 2025
Predmety: Humans, Health Literacy/standards, Male, Female, Middle Aged, Terminal Care/psychology, Terminal Care/methods, Terminal Care/standards, Aged, Switzerland, Surveys and Questionnaires, Aged, 80 and over, Caregivers, End of life, Experiences, Family care, Health literacy, Special situations and conditions, Research, RC952-1245
Popis: Background Despite the critical role of health literacy in utilizing palliative care and engaging in advance care planning, limited research exists on the determinants of end-of-life health literacy. This study investigates the association between individuals’ experiences with end-of-life care support to relatives and their end-of-life health literacy among a population-based sample of adults aged 58 and older. Method We used data from 1,548 respondents in Switzerland to Wave 8 (2019/2020) of the Survey on Health, Ageing, and Retirement in Europe. Their ability to understand medical jargon, find information, communicate, and make decisions about end-of-life care options was measured with the validated Subjective End-of-Life Health Literacy Scale. Experiences with end-of-life care support include having made medical decisions as healthcare proxy, accompanied, or cared for relatives at the end of life. Associations were estimated using ordinary least squares regressions, controlling for socio-demographic, health, and regional characteristics. Results Respondents who experienced being a healthcare proxy (p p p p p p Conclusions Our findings suggest that providing end-of-life care support to relatives is associated with higher end-of-life health literacy. Thus, as caregivers gain experience caring for others, targeted interventions could leverage their skills and encourage them to think of engaging in end-of-life planning for themselves.
Druh dokumentu: Article
Other literature type
Popis súboru: application/pdf
Jazyk: English
ISSN: 1472-684X
DOI: 10.1186/s12904-025-01645-1
Prístupová URL adresa: https://doaj.org/article/e512fa3cb18e460e9f7d9eaef4dfe890
http://nbn-resolving.org/urn/resolver.pl?urn=urn:nbn:ch:serval-BIB_768D7E5BB03C9
https://serval.unil.ch/resource/serval:BIB_768D7E5BB03C.P001/REF.pdf
https://serval.unil.ch/notice/serval:BIB_768D7E5BB03C
Rights: CC BY
Prístupové číslo: edsair.doi.dedup.....b4dfe9b783d82f7e7d9d21dc6e08b971
Databáza: OpenAIRE
Popis
Abstrakt:Background Despite the critical role of health literacy in utilizing palliative care and engaging in advance care planning, limited research exists on the determinants of end-of-life health literacy. This study investigates the association between individuals’ experiences with end-of-life care support to relatives and their end-of-life health literacy among a population-based sample of adults aged 58 and older. Method We used data from 1,548 respondents in Switzerland to Wave 8 (2019/2020) of the Survey on Health, Ageing, and Retirement in Europe. Their ability to understand medical jargon, find information, communicate, and make decisions about end-of-life care options was measured with the validated Subjective End-of-Life Health Literacy Scale. Experiences with end-of-life care support include having made medical decisions as healthcare proxy, accompanied, or cared for relatives at the end of life. Associations were estimated using ordinary least squares regressions, controlling for socio-demographic, health, and regional characteristics. Results Respondents who experienced being a healthcare proxy (p p p p p p Conclusions Our findings suggest that providing end-of-life care support to relatives is associated with higher end-of-life health literacy. Thus, as caregivers gain experience caring for others, targeted interventions could leverage their skills and encourage them to think of engaging in end-of-life planning for themselves.
ISSN:1472684X
DOI:10.1186/s12904-025-01645-1