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Assessment of Dementia in Minority Ethnic Groups in Europe: A 14‐Year Follow‐Up Survey: A 14-Year Follow-Up Survey

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Title: Assessment of Dementia in Minority Ethnic Groups in Europe: A 14‐Year Follow‐Up Survey: A 14-Year Follow-Up Survey
Authors: T. Rune Nielsen, Alexandre de Mendonça, Lutz Frölich, Sebastiaan Engelborghs, Dianne Gove, Daphné Lamirel, Clara Calia, Gunhild Waldemar
Contributors: Brussels Photonics, R&D centraal, Neuroprotection & Neuromodulation, Clinical sciences, Neurology
Source: Int J Geriatr Psychiatry
International journal of geriatric psychiatry: a journal of the psychiatry of late life and allied sciences
Nielsen, T R, de Mendonça, A, Frölich, L, Engelborghs, S, Gove, D, Lamirel, D, Calia, C & Waldemar, G 2024, ' Assessment of Dementia in Minority Ethnic Groups in Europe : A 14-Year Follow-Up Survey ', International Journal of Geriatric Psychiatry, vol. 39, no. 12, e70034 . https://doi.org/10.1002/gps.70034
Publisher Information: Wiley, 2024.
Publication Year: 2024
Subject Terms: Male, diagnosis, assessment, Dementia/ethnology, Europe/ethnology, Health Services Accessibility, 03 medical and health sciences, 0302 clinical medicine, inequalities, Surveys and Questionnaires, Humans, survey, Aged, questionnaire, Health Services Accessibility/statistics & numerical data, Ethnic and Racial Minorities/statistics & numerical data, minority ethnic groups, Europe, Cross-Sectional Studies, Ethnic and Racial Minorities, Female, Dementia, Human medicine, dementia, Research Article, Follow-Up Studies
Description: ObjectivesThere is no European consensus on good clinical practice for timely diagnosis and culturally appropriate care of people with dementia from minority ethnic groups. Despite significant advances in culture‐sensitive dementia diagnostics, little is known about how this has been implemented in clinical practice. The aims of this follow‐up survey were to explore current practices for assessing dementia in patients from minority ethnic groups in Europe and to determine whether barriers in access to specialized dementia services have changed during the last 14 years.MethodsA cross‐sectional online survey was conducted in the European Alzheimer's Disease Consortium (EADC) in June 2023. The survey utilized questionnaires from a previous EADC survey from 2009 and focused on different points in the clinical assessment of dementia in patients from minority ethnic groups.ResultsThirty‐three centers from 15 countries participated in the survey, of which 21 were the same as in the 2009 survey. Patients from minority ethnic groups were seen on a regular basis in 91% of these centers, which was a significant increase compared to 2009 (69%, p = 0.04). Despite perceived clinical expertise increasing, implemented strategies for bypassing cultural and linguistic barriers were sparse and communication problems and lack of adequate assessment tools continued to be the main perceived barriers in diagnostic assessment of dementia in minority ethnic groups.ConclusionsPatients from minority ethnic groups are increasingly being referred for diagnostic assessment of dementia in Europe. Despite some improvements, diagnostic challenges generally remained the same as in 2009 and there is a continuous need to implement effective cross‐cultural communication and assessment practices.
Document Type: Article
Other literature type
File Description: application/pdf
Language: English
ISSN: 1099-1166
0885-6230
DOI: 10.1002/gps.70034
Access URL: https://pubmed.ncbi.nlm.nih.gov/39663199
https://repository.uantwerpen.be/docstore/d:irua:27285
https://hdl.handle.net/10067/2110920151162165141
https://curis.ku.dk/ws/files/419779677/Int_J_Geriat_Psychiatry_2024_Nielsen_Assessment_of_Dementia_in_Minority_Ethnic_Groups_in_Europe_A_14_Year_Follow_Up.pdf
https://biblio.vub.ac.be/vubir/(902cf511-ffd3-4f0d-9fa7-68f269168e56).html
Rights: CC BY NC ND
URL: http://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (http://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
Accession Number: edsair.doi.dedup.....75ff97f2c9d98bb926e07e1afe4a4d89
Database: OpenAIRE
Description
Abstract:ObjectivesThere is no European consensus on good clinical practice for timely diagnosis and culturally appropriate care of people with dementia from minority ethnic groups. Despite significant advances in culture‐sensitive dementia diagnostics, little is known about how this has been implemented in clinical practice. The aims of this follow‐up survey were to explore current practices for assessing dementia in patients from minority ethnic groups in Europe and to determine whether barriers in access to specialized dementia services have changed during the last 14 years.MethodsA cross‐sectional online survey was conducted in the European Alzheimer's Disease Consortium (EADC) in June 2023. The survey utilized questionnaires from a previous EADC survey from 2009 and focused on different points in the clinical assessment of dementia in patients from minority ethnic groups.ResultsThirty‐three centers from 15 countries participated in the survey, of which 21 were the same as in the 2009 survey. Patients from minority ethnic groups were seen on a regular basis in 91% of these centers, which was a significant increase compared to 2009 (69%, p = 0.04). Despite perceived clinical expertise increasing, implemented strategies for bypassing cultural and linguistic barriers were sparse and communication problems and lack of adequate assessment tools continued to be the main perceived barriers in diagnostic assessment of dementia in minority ethnic groups.ConclusionsPatients from minority ethnic groups are increasingly being referred for diagnostic assessment of dementia in Europe. Despite some improvements, diagnostic challenges generally remained the same as in 2009 and there is a continuous need to implement effective cross‐cultural communication and assessment practices.
ISSN:10991166
08856230
DOI:10.1002/gps.70034