Troubling complaint: Addressing hepatitis C‐related stigma and discrimination through complaint mechanisms
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| Titel: | Troubling complaint: Addressing hepatitis C‐related stigma and discrimination through complaint mechanisms |
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| Autoren: | Emily Lenton, Dion Kagan, Kate Seear, Sean Mulcahy, Adrian Farrugia, kylie valentine, Michael Edwards, Danny Jeffcote |
| Quelle: | Sociology of Health & Illness. 46:1400-1418 |
| Verlagsinformationen: | Wiley, 2024. |
| Publikationsjahr: | 2024 |
| Schlagwörter: | Male, Adult, anzsrc-for: 2202 History and Philosophy of Specific Fields, anzsrc-for: 4401 Anthropology, Social Stigma, 8.1 Organisation and delivery of services, anzsrc-for: 4206 Public health, FOS: Health sciences, and research governance, 8.3 Policy, complaint, Interviews as Topic, Sociology, Health services and systems, Humans, anzsrc-for: 44 Human Society, anzsrc-for: 4410 Sociology, Qualitative Research, 44 Human Society, Public health, anzsrc-for: 42 Health Sciences, Australia, 42 Health Sciences, Health sciences, 3 Good Health and Well Being, Human society, Social Discrimination, Middle Aged, 4203 Health Services and Systems, ethics, Hepatitis C, anzsrc-for: 1608 Sociology, FOS: Sociology, 3. Good health, Sara Ahmed, anzsrc-for: 4203 Health Services and Systems, stigma, Anthropology, Female, Generic health relevance, discrimination, anzsrc-for: 1117 Public Health and Health Services |
| Beschreibung: | The need to grapple with hepatitis C‐related stigma and discrimination in Australian health‐care settings has been recognised in public policy, and work is underway to address it. But how likely are people to raise a complaint when they experience stigma or discrimination? And how effective and accessible are complaints mechanisms? Given complaint procedures are considered important parts of the delivery of safe and ethical health care, these are important questions that have yet to be substantially explored. Drawing on interviews with people with lived experience of hepatitis C (n = 30), this article considers how affected people feel about complaints processes and the act of complaining. Alongside these perspectives, we discuss complaint mechanisms, and the views of stakeholders who work with hepatitis C‐affected communities in policy, health, legal and advocacy roles (n = 30) on the institutional and cultural dynamics of complaint. We draw on Sara Ahmed’s Complaint! and Fraser et al.’s work on drug‐related stigma to analyse these concerns that have yet to be researched, and argue that the (unlikely) prospect of successful complaint is a key part of the network of forces that perpetuate stigma, discrimination and disadvantage among people who have (lived with) hepatitis C. Although people with lived experience are often powerful advocates and acutely aware of the deficiencies in the quality of their treatment, our interviews suggest that the obstacles they face to accessing health care are seen as commonplace, intractable and insurmountable; and, that mechanisms for addressing them—where they exist at all—treat complaints in narrowly individualising terms and expose complainants to dismissal. Following Ahmed, we call for a ‘troubling’ of complaints—responding to them not as individual problems but rather as collective, structural concerns, necessitating new approaches. |
| Publikationsart: | Article Other literature type |
| Sprache: | English |
| ISSN: | 1467-9566 0141-9889 |
| DOI: | 10.1111/1467-9566.13776 |
| DOI: | 10.26181/27041788.v1 |
| DOI: | 10.26181/27041788 |
| Zugangs-URL: | https://pubmed.ncbi.nlm.nih.gov/38594217 |
| Rights: | CC BY NC |
| Dokumentencode: | edsair.doi.dedup.....50d60c8740ed851309b19e75219b7e60 |
| Datenbank: | OpenAIRE |
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Nájsť tento článok vo Web of Science | Abstract: | The need to grapple with hepatitis C‐related stigma and discrimination in Australian health‐care settings has been recognised in public policy, and work is underway to address it. But how likely are people to raise a complaint when they experience stigma or discrimination? And how effective and accessible are complaints mechanisms? Given complaint procedures are considered important parts of the delivery of safe and ethical health care, these are important questions that have yet to be substantially explored. Drawing on interviews with people with lived experience of hepatitis C (n = 30), this article considers how affected people feel about complaints processes and the act of complaining. Alongside these perspectives, we discuss complaint mechanisms, and the views of stakeholders who work with hepatitis C‐affected communities in policy, health, legal and advocacy roles (n = 30) on the institutional and cultural dynamics of complaint. We draw on Sara Ahmed’s Complaint! and Fraser et al.’s work on drug‐related stigma to analyse these concerns that have yet to be researched, and argue that the (unlikely) prospect of successful complaint is a key part of the network of forces that perpetuate stigma, discrimination and disadvantage among people who have (lived with) hepatitis C. Although people with lived experience are often powerful advocates and acutely aware of the deficiencies in the quality of their treatment, our interviews suggest that the obstacles they face to accessing health care are seen as commonplace, intractable and insurmountable; and, that mechanisms for addressing them—where they exist at all—treat complaints in narrowly individualising terms and expose complainants to dismissal. Following Ahmed, we call for a ‘troubling’ of complaints—responding to them not as individual problems but rather as collective, structural concerns, necessitating new approaches. |
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| ISSN: | 14679566 01419889 |
| DOI: | 10.1111/1467-9566.13776 |