Family carers’ experiences regarding patient transfers between care settings in palliative care: an interview study: an interview study
Uloženo v:
| Název: | Family carers’ experiences regarding patient transfers between care settings in palliative care: an interview study: an interview study |
|---|---|
| Autoři: | Mertens, Fien, Vanderstichelen, Steven, Deveugele, Myriam, Deliens, Luc, Pype, Peter |
| Přispěvatelé: | FORMER_End-of-life Care Research Group, Faculty of Economic and Social Sciences and Solvay Business School, Family Medicine and Chronic Care, End-of-life Care Research Group |
| Zdroj: | ANNALS OF PALLIATIVE MEDICINE |
| Informace o vydavateli: | AME Publishing Company, 2023. |
| Rok vydání: | 2023 |
| Témata: | Advanced and Specialized Nursing, Patient Transfer, Anesthesiology and Pain Medicine, Caregivers, Health Personnel, Palliative Care, Medicine and Health Sciences, Social Sciences, Humans, EoLC, Qualitative Research, 3. Good health |
| Popis: | To understand how family carers experienced the illness trajectory of their next of kin related to transfers taken place between care settings in palliative care, their experiences and attitude regarding the transfer decision and their experiences regarding patient transfers across settings.Semi-structured interviews were held with 21 family carers. A constant comparative approach was used to analyze data.Three themes were identified after data analysis: (I) patient transfer dynamics, (II) experiences regarding the changed care environment and (III) impact of the transfer on the family carer. The dynamics of the patient's transfer were affected by the balance between the care provision (professional and informal care) and the changes in the patient's needs. Experiences regarding patient transfers strongly varied depending on the setting and were based on the personnel's conduct and the quality of receiving information. Study results revealed shortcomings in perceived inter-professional communication and continuity of information during a patient's hospitalization. Concomitant feelings of relief, anxiety or feeling insecure could arise in situations of a patient's transfer.This study highlighted the adaptability of family carers when caring for their next of kin with palliative care needs. To support carers in coping with their role as caregivers and to share the responsibility of caregiving, involved healthcare professionals should timely evaluate family carers' preferences and needs and adapt the care organization accordingly. A pro-active attitude, which anticipates on the possibility of an impending decompensation of the family carer, is recommended. When the decision for a patient's transfer is taken, multiple factors influenced the choice of the care setting. Healthcare professionals need to take these factors into account when discussing, with patients and carers, the need for a transfer. Continuity of information can be improved. Further development and evaluation of interventions, aimed at improving informational continuity can be recommended. |
| Druh dokumentu: | Article |
| Popis souboru: | application/pdf |
| ISSN: | 2224-5839 2224-5820 |
| DOI: | 10.21037/apm-23-20 |
| Přístupová URL adresa: | https://pubmed.ncbi.nlm.nih.gov/37431219 https://biblio.vub.ac.be/vubir/(728a0cdc-d906-4a10-aea9-ad9edefad184).html https://doi.org/10.21037/apm-23-20 https://hdl.handle.net/20.500.14017/728a0cdc-d906-4a10-aea9-ad9edefad184 http://doi.org/10.21037/apm-23-20 https://biblio.ugent.be/publication/01H5RZFC5GYJZY1G97A3NPT94B https://biblio.ugent.be/publication/01H5RZFC5GYJZY1G97A3NPT94B/file/01H5RZHVHQ78Y348P21PCRCT6J http://hdl.handle.net/1854/LU-01H5RZFC5GYJZY1G97A3NPT94B |
| Přístupové číslo: | edsair.doi.dedup.....4f064470b95e48157a9f046d6ff4274f |
| Databáze: | OpenAIRE |
Full Text Finder 
Nájsť tento článok vo Web of Science | Abstrakt: | To understand how family carers experienced the illness trajectory of their next of kin related to transfers taken place between care settings in palliative care, their experiences and attitude regarding the transfer decision and their experiences regarding patient transfers across settings.Semi-structured interviews were held with 21 family carers. A constant comparative approach was used to analyze data.Three themes were identified after data analysis: (I) patient transfer dynamics, (II) experiences regarding the changed care environment and (III) impact of the transfer on the family carer. The dynamics of the patient's transfer were affected by the balance between the care provision (professional and informal care) and the changes in the patient's needs. Experiences regarding patient transfers strongly varied depending on the setting and were based on the personnel's conduct and the quality of receiving information. Study results revealed shortcomings in perceived inter-professional communication and continuity of information during a patient's hospitalization. Concomitant feelings of relief, anxiety or feeling insecure could arise in situations of a patient's transfer.This study highlighted the adaptability of family carers when caring for their next of kin with palliative care needs. To support carers in coping with their role as caregivers and to share the responsibility of caregiving, involved healthcare professionals should timely evaluate family carers' preferences and needs and adapt the care organization accordingly. A pro-active attitude, which anticipates on the possibility of an impending decompensation of the family carer, is recommended. When the decision for a patient's transfer is taken, multiple factors influenced the choice of the care setting. Healthcare professionals need to take these factors into account when discussing, with patients and carers, the need for a transfer. Continuity of information can be improved. Further development and evaluation of interventions, aimed at improving informational continuity can be recommended. |
|---|---|
| ISSN: | 22245839 22245820 |
| DOI: | 10.21037/apm-23-20 |