"Let's just die together, Mom": Family caregivers' responses to caring for elderly people with dementia.

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Název: "Let's just die together, Mom": Family caregivers' responses to caring for elderly people with dementia.
Alternate Title: „Zemřeme spolu, mami": Reakce rodinných pečovatelů na péči o seniory s demencí. (Czech)
Autoři: Widyastuti, Rita Hadi, Sahar, Junaiti, Rekawati, Etty, Kekalih, Aria
Zdroj: KONTAKT - Journal of Nursing & Social Sciences related to Health & Illness; 2023, Vol. 25 Issue 4, p339-345, 7p
Témata: CAREGIVER attitudes, STROKE, RESEARCH methodology, DENIAL (Psychology), FAMILY health, INTERVIEWING, BURDEN of care, DEMENTIA patients, QUALITATIVE research, PHENOMENOLOGY, COGNITIVE aging, RESEARCH funding, DEMENTIA, PARKINSON'S disease, LONELINESS, MENTAL depression, ACCEPTANCE & commitment therapy, PSYCHOLOGICAL stress, SPIRITUAL care (Medical care), OLD age
Geografický termín: INDONESIA
Abstract (English): Introduction: Elderly people with dementia are highly dependent on caregivers; they require more assistance and supervision as the disease progresses and its severity increases. Family caregivers have different responses to caring for elderly people with dementia. This study aimed to explore Indonesian family caregivers' responses to caring for elderly people with dementia. Methods: A qualitative research design was selected for this study. On the basis of semi-structured interviews, a descriptive phenomenological study was conducted among 15 purposively-recruited family caregivers. Results: Three main themes and eight sub-themes emerged from the data. The first theme was family caregivers' perceptions of dementia. The sub-themes were that dementia is a common disease due to the aging process, and dementia is a disease due to Parkinson's, stroke, stress, and loneliness. The second theme was the meaning of caring for elderly people with dementia. The sub-themes were that obligation to care for older people with dementia, form of filial piety and the spiritual meaning of caring for older people with dementia. The third theme was the process of acceptance in taking on the role of caregiver to an elderly person with dementia. The sub-themes were that denial, depression, and acceptance. Conclusion: Each of these themes has a cultural and spiritual dimension, and caregivers require professional assistance from health workers that accounts for these dimensions of caregiving. Likewise, it is important to identify depression in family caregivers so that suitable interventions can be provided. [ABSTRACT FROM AUTHOR]
Abstract (Czech): Úvod: Senioři s demencí jsou vysoce závislí na pečovatelích; jak nemoc postupuje a její závažnost se zvyšuje, vyžadují větší pomoc a dohled. Rodinní pečovatelé mají různé reakce na péči o seniory s demencí. Cílem této studie bylo prozkoumat reakce indonéských rodinných pečovatelů na péči o seniory s demencí. Metody: Pro tuto studii byl vybrán kvalitativní výzkumný design. Na základě polostrukturovaných rozhovorů byla provedena deskriptivní fenomenologická studie mezi 15 účelově vybranými rodinnými pečovateli. Výsledky: Z dat vyplynula tři hlavní témata a osm podtémat. Prvním tématem bylo vnímání demence ze strany rodinných pečovatelů. Dílčími tématy bylo, že demence je běžné onemocnění způsobené procesem stárnutí a demence je onemocnění způsobené Parkinsonovou chorobou, mrtvicí, stresem a osamělostí. Druhým tématem byl smysl péče o seniory s demencí. Dílčími tématy byly povinnost pečovat o seniory s demencí, forma filiální zbožnosti a duchovní smysl péče o seniory s demencí. Třetím tématem byl proces přijetí do role pečovatele o seniora s demencí. Dílčími tématy byly popírání, deprese a přijímání. Závěr: Každé z těchto témat má kulturní a duchovní rozměr a pečovatelé vyžadují odbornou pomoc zdravotníků, která odpovídá těmto rozměrům péče. Stejně tak je důležité identifikovat depresi u rodinných pečovatelů, aby mohly být poskytnuty vhodné intervence. [ABSTRACT FROM AUTHOR]
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Databáze: Complementary Index
Popis
Abstrakt:Introduction: Elderly people with dementia are highly dependent on caregivers; they require more assistance and supervision as the disease progresses and its severity increases. Family caregivers have different responses to caring for elderly people with dementia. This study aimed to explore Indonesian family caregivers' responses to caring for elderly people with dementia. Methods: A qualitative research design was selected for this study. On the basis of semi-structured interviews, a descriptive phenomenological study was conducted among 15 purposively-recruited family caregivers. Results: Three main themes and eight sub-themes emerged from the data. The first theme was family caregivers' perceptions of dementia. The sub-themes were that dementia is a common disease due to the aging process, and dementia is a disease due to Parkinson's, stroke, stress, and loneliness. The second theme was the meaning of caring for elderly people with dementia. The sub-themes were that obligation to care for older people with dementia, form of filial piety and the spiritual meaning of caring for older people with dementia. The third theme was the process of acceptance in taking on the role of caregiver to an elderly person with dementia. The sub-themes were that denial, depression, and acceptance. Conclusion: Each of these themes has a cultural and spiritual dimension, and caregivers require professional assistance from health workers that accounts for these dimensions of caregiving. Likewise, it is important to identify depression in family caregivers so that suitable interventions can be provided. [ABSTRACT FROM AUTHOR]
ISSN:12124117
DOI:10.32725/kont.2023.039