Using Citizen Science to Address Out-of-Pocket Healthcare Expenditure with Aboriginal Communities in the Far West of South Australia: A Protocol.
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| Název: | Using Citizen Science to Address Out-of-Pocket Healthcare Expenditure with Aboriginal Communities in the Far West of South Australia: A Protocol. |
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| Autoři: | Ryder C; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.; The George Institute for Global Health, University of New South Wales, Gadigal, Sydney 2000, Australia.; School of Population Health, University of New South Wales, Gadigal, Sydney 2000, Australia., Mahoney R; Commonwealth Scientific Industrial Research Organisations, Turrbal and Yuggera, Brisbane 4000, Australia., Sharpe P; Far West Community Partnerships, Kokatha, Mirning and Wirangu Country, Ceduna 5690, Australia., Sallows G; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia., Canuto K; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia., Goodman A; Commonwealth Scientific Industrial Research Organisations, Turrbal and Yuggera, Brisbane 4000, Australia., Coombes J; The George Institute for Global Health, University of New South Wales, Gadigal, Sydney 2000, Australia., Pearson O; Wardliparingga, South Australian Health and Medical Research Institute, Kaurna Yerta, Adelaide 5000, Australia.; Faculty of Health and Medical Sciences, University of Adelaide, Kaurna Yerta, Adeliade 5000, Australia., Hughes JT; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia., Varnfield M; Commonwealth Scientific Industrial Research Organisations, Turrbal and Yuggera, Brisbane 4000, Australia., Oster C; College of Nursing and Health Sciences, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.; Caring Futures Institute, Flinders University, Kaurna Yerta, Adelaide 5000, Australia., Karnon J; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia., Drummond C; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia., Smith JA; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia., Omodei-James S; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia., Otieno L; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia., Soltani A; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia., Bonevski B; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.; School of Medicine and Public Health, The University of Newcastle, Awabakal, Newcastle 2267, Australia. |
| Zdroj: | International journal of environmental research and public health [Int J Environ Res Public Health] 2025 Oct 28; Vol. 22 (11). Date of Electronic Publication: 2025 Oct 28. |
| Způsob vydávání: | Journal Article |
| Jazyk: | English |
| Informace o časopise: | Publisher: MDPI Country of Publication: Switzerland NLM ID: 101238455 Publication Model: Electronic Cited Medium: Internet ISSN: 1660-4601 (Electronic) Linking ISSN: 16604601 NLM ISO Abbreviation: Int J Environ Res Public Health Subsets: MEDLINE |
| Imprint Name(s): | Original Publication: Basel : MDPI, c2004- |
| Výrazy ze slovníku MeSH: | Citizen Science* , Health Expenditures*/statistics & numerical data , Health Services, Indigenous*/economics, Humans ; South Australia |
| Abstrakt: | Out-of-pocket health expenditure (OOPHE) significantly impacts people with chronic and complex diseases (CCDs) and injuries. Aboriginal communities experience a higher burden of CCDs and injury, along with greater OOPHE inequities. This project aims to develop and implement a social prescribing digital platform (Web App) to reduce OOPHE. It is grounded in citizen science approaches that value the lived experience and knowledge of Aboriginal people in shaping solutions. The project uses a citizen science methodology adapted for these communities, using knowledge interface methodology to weave together Indigenous and Western knowledges. Research methods (Indigenous, quantitative, qualitative) explore the relational nature of OOPHE risks and protective factors through co-design and workshops with Aboriginal participants to develop the Web App. A community-centric developmental evaluation guides the trial and refinement of the platform, allowing for ongoing learning and adaptation. Process measures inform a national scale-up and evaluation framework. Addressing OOPHE is essential to improving health and wellbeing for Aboriginal and Torres Strait Islander individuals and families living with or at risk of CCDs. This initiative aims to reduce the impact of OOPHE through digital social prescribing, there by connecting people with essential community services to access healthcare, offering a scalable approach to addressing health inequities nationwide. |
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| Grant Information: | 2029047 Medical Research Future Fund; EL1 - 2017719 National Health and Medical Research Centre |
| Contributed Indexing: | Keywords: Aboriginal and Torres Strait Islander; Web App; citizen science; community engagement; mixed methods; out-of-pocket health expenditure |
| Entry Date(s): | Date Created: 20251127 Date Completed: 20251127 Latest Revision: 20251130 |
| Update Code: | 20251130 |
| PubMed Central ID: | PMC12652995 |
| DOI: | 10.3390/ijerph22111640 |
| PMID: | 41302586 |
| Databáze: | MEDLINE |
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Nájsť tento článok vo Web of Science | Abstrakt: | Out-of-pocket health expenditure (OOPHE) significantly impacts people with chronic and complex diseases (CCDs) and injuries. Aboriginal communities experience a higher burden of CCDs and injury, along with greater OOPHE inequities. This project aims to develop and implement a social prescribing digital platform (Web App) to reduce OOPHE. It is grounded in citizen science approaches that value the lived experience and knowledge of Aboriginal people in shaping solutions. The project uses a citizen science methodology adapted for these communities, using knowledge interface methodology to weave together Indigenous and Western knowledges. Research methods (Indigenous, quantitative, qualitative) explore the relational nature of OOPHE risks and protective factors through co-design and workshops with Aboriginal participants to develop the Web App. A community-centric developmental evaluation guides the trial and refinement of the platform, allowing for ongoing learning and adaptation. Process measures inform a national scale-up and evaluation framework. Addressing OOPHE is essential to improving health and wellbeing for Aboriginal and Torres Strait Islander individuals and families living with or at risk of CCDs. This initiative aims to reduce the impact of OOPHE through digital social prescribing, there by connecting people with essential community services to access healthcare, offering a scalable approach to addressing health inequities nationwide. |
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| ISSN: | 1660-4601 |
| DOI: | 10.3390/ijerph22111640 |