'Thrown in the deep end': a qualitative study of community participation during inpatient rehabilitation and transition to community living from the perspective of family members of people with severe brain injury.
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| Title: | 'Thrown in the deep end': a qualitative study of community participation during inpatient rehabilitation and transition to community living from the perspective of family members of people with severe brain injury. |
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| Authors: | Currie S; School of Allied Health, Human Services & Sport, La Trobe University, Melbourne, Australia.; Summer Foundation, Melbourne, Australia.; Alfred Health, Melbourne, Australia., Douglas J; School of Allied Health, Human Services & Sport, La Trobe University, Melbourne, Australia.; Summer Foundation, Melbourne, Australia., D'Cruz K; School of Allied Health, Human Services & Sport, La Trobe University, Melbourne, Australia.; Summer Foundation, Melbourne, Australia., Winkler D; School of Allied Health, Human Services & Sport, La Trobe University, Melbourne, Australia.; Summer Foundation, Melbourne, Australia. |
| Source: | Brain impairment : a multidisciplinary journal of the Australian Society for the Study of Brain Impairment [Brain Impair] 2025 Dec 23; Vol. 26 (4). |
| Publication Type: | Journal Article |
| Language: | English |
| Journal Info: | Publisher: CSIRO Publishing Country of Publication: Australia NLM ID: 101121542 Publication Model: Print Cited Medium: Internet ISSN: 1839-5252 (Electronic) Linking ISSN: 18395252 NLM ISO Abbreviation: Brain Impair Subsets: MEDLINE |
| Imprint Name(s): | Publication: 2024-: Clayton VIC : CSIRO Publishing Original Publication: Bowen Hills, QLD, Australia : Published for the ASSBI by Australian Academic Press, c2000- |
| MeSH Terms: | Family*/psychology , Brain Injuries*/rehabilitation , Brain Injuries*/psychology , Community Participation*/psychology , Social Participation*/psychology, Humans ; Male ; Female ; Middle Aged ; Qualitative Research ; Adult ; Aged ; Inpatients |
| Abstract: | Background: To understand the experience of family members of people with severe acquired brain injury (ABI) as they support their loved one to commence community and social participation during inpatient rehabilitation and transition to the community. Methods: Constructivist grounded theory methodology guided the process of data collection and analysis. Data were collected via in-depth interviews using a semi-structured interview guide. Results: Eight family members were interviewed, inclusive of five parents and three spouses of people living with severe ABI. The participants' family member with ABI were on average 4 years post-discharge from hospital at the time of the interview. Data analysis produced a core category: 'An arduous journey' and four categories: adjusting to change, overwhelming responsibility, learning on the job and needing people to understand. Conclusion: Although family members clearly play an important role in the achievement of community and social participation, the participants of this study identified many factors that impact their experience of supporting positive outcomes. There are important implications for rehabilitation services, such as ensuring families feel welcomed and engaged within rehabilitation, positioning the person with ABI within their family context in rehabilitation, and providing opportunities for supported, meaningful and contextual experiences within rehabilitation. (© 2025 The Author(s) (or their employer(s)). Published by CSIRO Publishing on behalf of the Australasian Society for the Study of Brain Impairment.) |
| Contributed Indexing: | Keywords: acquired brain injury; community integration; community participation; family members; inpatient rehabilitation; qualitative; social participation; transition |
| Entry Date(s): | Date Created: 20251126 Date Completed: 20251130 Latest Revision: 20251130 |
| Update Code: | 20251201 |
| DOI: | 10.1071/IB25061 |
| PMID: | 41292026 |
| Database: | MEDLINE |
Nájsť tento článok vo Web of Science | Abstract: | Background: To understand the experience of family members of people with severe acquired brain injury (ABI) as they support their loved one to commence community and social participation during inpatient rehabilitation and transition to the community.<br />Methods: Constructivist grounded theory methodology guided the process of data collection and analysis. Data were collected via in-depth interviews using a semi-structured interview guide.<br />Results: Eight family members were interviewed, inclusive of five parents and three spouses of people living with severe ABI. The participants' family member with ABI were on average 4 years post-discharge from hospital at the time of the interview. Data analysis produced a core category: 'An arduous journey' and four categories: adjusting to change, overwhelming responsibility, learning on the job and needing people to understand.<br />Conclusion: Although family members clearly play an important role in the achievement of community and social participation, the participants of this study identified many factors that impact their experience of supporting positive outcomes. There are important implications for rehabilitation services, such as ensuring families feel welcomed and engaged within rehabilitation, positioning the person with ABI within their family context in rehabilitation, and providing opportunities for supported, meaningful and contextual experiences within rehabilitation.<br /> (© 2025 The Author(s) (or their employer(s)). Published by CSIRO Publishing on behalf of the Australasian Society for the Study of Brain Impairment.) |
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| ISSN: | 1839-5252 |
| DOI: | 10.1071/IB25061 |