Development of an mHealth Application for Self-Management of Post-Stroke Aphasia: Protocol for Experience-Based Co-Design, User Experience Testing, Feasibility Field Test and Process Evaluation.
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| Title: | Development of an mHealth Application for Self-Management of Post-Stroke Aphasia: Protocol for Experience-Based Co-Design, User Experience Testing, Feasibility Field Test and Process Evaluation. |
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| Authors: | Wallace SJ; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia.; Centre of Research Excellence in Aphasia Recovery and Rehabilitation, Melbourne, Australia., Ng ZY; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia., Burton B; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia., Isaacs M; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia., Deslandes R; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia., Sinh G; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia., Barron K; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia., Jamieson P; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia., Shrubsole KA; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia.; Centre of Research Excellence in Aphasia Recovery and Rehabilitation, Melbourne, Australia.; Princess Alexandra Hospital, Metro South Hospital and Health Service, Brisbane, Queensland, Australia., Copland DA; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia.; Centre of Research Excellence in Aphasia Recovery and Rehabilitation, Melbourne, Australia., Wiles J; School of Electrical Engineering and Computer Science, The University of Queensland, Brisbane, Queensland, Australia., Palmer VJ; Faculty of Dentistry, Medicine and Health Sciences, Department of General Practice, The University of Melbourne, Melbourne, Victoria, Australia.; The ALIVE National Centre for Mental Health Research Translation, Melbourne, Victoria, Australia., Evans P; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia., Hudson K; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia., Angwin AJ; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia., Hill AJ; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia.; Centre of Research Excellence in Aphasia Recovery and Rehabilitation, Melbourne, Australia.; School of Allied Health, Human Services and Sport, La Trobe University, Melbourne, Victoria, Australia., Timmer BHB; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia.; Sonova AG, Zürich, Switzerland., Gullo MJ; School of Applied Psychology, Griffith University, Brisbane, Queensland, Australia.; Centre for Mental Health, Griffith University, Brisbane, Queensland, Australia., Campbell JH; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia., Worthy P; Queensland Aphasia Research Centre, The University of Queensland, Brisbane, Queensland, Australia.; Surgical, Treatment and Rehabilitation Service Education and Research Alliance, The University of Queensland and Metro North Hospital and Health Service, Brisbane, Queensland, Australia.; School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia.; School of Electrical Engineering and Computer Science, The University of Queensland, Brisbane, Queensland, Australia. |
| Source: | International journal of language & communication disorders [Int J Lang Commun Disord] 2025 Nov-Dec; Vol. 60 (6), pp. e70162. |
| Publication Type: | Journal Article |
| Language: | English |
| Journal Info: | Publisher: Wiley Country of Publication: United States NLM ID: 9803709 Publication Model: Print Cited Medium: Internet ISSN: 1460-6984 (Electronic) Linking ISSN: 13682822 NLM ISO Abbreviation: Int J Lang Commun Disord Subsets: MEDLINE |
| Imprint Name(s): | Publication: 2011- : Malden, MA : Wiley Original Publication: London : Taylor & Francis for the Royal College of Speech & Language Therapists, c1998- |
| MeSH Terms: | Aphasia*/etiology , Aphasia*/therapy , Aphasia*/rehabilitation , Self-Management*/methods , Mobile Applications* , Stroke*/complications , Stroke Rehabilitation*/methods, Humans ; Telemedicine ; Feasibility Studies ; Focus Groups ; Male ; Female |
| Abstract: | Background: Speech and language therapy for post-stroke aphasia (language/communication impairment) improves language and communication in the short-term; however, access to therapy is limited, and effects are not always maintained. Mobile Health (mHealth) applications may support long-term therapy access and maintenance of gains. We present a protocol for the co-design and evaluation of a novel mHealth application for self-managed aphasia therapy. Methods: An mHealth application will be developed using Experience-Based Co-Design and Human-Centred Design with people with aphasia (PWA), significant others (SO) and health professionals (HPs). Focus groups will explore self-management experiences and establish co-design priorities using the nominal group technique (n = 10-15 each group). The prototype will be co-designed in eight workshops (n = 4 each group) and evaluated via adapted user-experience (UX) testing. UX testing will use pluralistic walk-throughs, think-aloud evaluations and measures of satisfaction (SUS) and acceptance/intended use (UTAUT-2) (PWA n = 10, SO n = 5, HP n = 10). Feasibility and preliminary efficacy (primary outcomes of treatment adherence and goal attainment) will be assessed through a 4-week field test, followed by focus groups (PWA and SO, n = 20 each). A process evaluation will assess factors influencing (1) the process and outcomes of research involvement, and (2) the functioning and acceptability of the prototype application. Discussion: Outcomes will include a prototype co-designed mHealth application for self-management of post-stroke aphasia and evidence of acceptability, usability and preliminary efficacy. The process evaluation will increase understanding of the adjustments required to support meaningful participation of PWA in co-design, and future directions for application development and scale-up. What This Paper Adds: What is already known on this subject mHealth apps can assist self-management through personalised goals, interactive support and in-the-moment feedback. What this paper adds to existing knowledge This paper describes the protocol for the co-design and evaluation of a novel mHealth application for self-managed post-stroke aphasia treatment (AphasiaFit). What are the potential or actual clinical implications of this work? The outcome of our research will be a co-designed mHealth application for self-managed post-stroke aphasia treatment. Clinical implementation of this application may increase access and adherence to aphasia therapy in the chronic phase of stroke recovery. (© 2025 Royal College of Speech and Language Therapists.) |
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| Contributed Indexing: | Keywords: aphasia; co‐design; efficacy; feasibility; mHealth apps; self‐management; speech language therapy; usability |
| Entry Date(s): | Date Created: 20251112 Date Completed: 20251113 Latest Revision: 20251113 |
| Update Code: | 20251114 |
| DOI: | 10.1111/1460-6984.70162 |
| PMID: | 41222488 |
| Database: | MEDLINE |
| Abstract: | Background: Speech and language therapy for post-stroke aphasia (language/communication impairment) improves language and communication in the short-term; however, access to therapy is limited, and effects are not always maintained. Mobile Health (mHealth) applications may support long-term therapy access and maintenance of gains. We present a protocol for the co-design and evaluation of a novel mHealth application for self-managed aphasia therapy.<br />Methods: An mHealth application will be developed using Experience-Based Co-Design and Human-Centred Design with people with aphasia (PWA), significant others (SO) and health professionals (HPs). Focus groups will explore self-management experiences and establish co-design priorities using the nominal group technique (n = 10-15 each group). The prototype will be co-designed in eight workshops (n = 4 each group) and evaluated via adapted user-experience (UX) testing. UX testing will use pluralistic walk-throughs, think-aloud evaluations and measures of satisfaction (SUS) and acceptance/intended use (UTAUT-2) (PWA n = 10, SO n = 5, HP n = 10). Feasibility and preliminary efficacy (primary outcomes of treatment adherence and goal attainment) will be assessed through a 4-week field test, followed by focus groups (PWA and SO, n = 20 each). A process evaluation will assess factors influencing (1) the process and outcomes of research involvement, and (2) the functioning and acceptability of the prototype application.<br />Discussion: Outcomes will include a prototype co-designed mHealth application for self-management of post-stroke aphasia and evidence of acceptability, usability and preliminary efficacy. The process evaluation will increase understanding of the adjustments required to support meaningful participation of PWA in co-design, and future directions for application development and scale-up.<br />What This Paper Adds: What is already known on this subject mHealth apps can assist self-management through personalised goals, interactive support and in-the-moment feedback. What this paper adds to existing knowledge This paper describes the protocol for the co-design and evaluation of a novel mHealth application for self-managed post-stroke aphasia treatment (AphasiaFit). What are the potential or actual clinical implications of this work? The outcome of our research will be a co-designed mHealth application for self-managed post-stroke aphasia treatment. Clinical implementation of this application may increase access and adherence to aphasia therapy in the chronic phase of stroke recovery.<br /> (© 2025 Royal College of Speech and Language Therapists.) |
|---|---|
| ISSN: | 1460-6984 |
| DOI: | 10.1111/1460-6984.70162 |
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