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Adult Proxy Online Record Access - Differences Across Four Countries.

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Titel: Adult Proxy Online Record Access - Differences Across Four Countries.
Autoren: Hägglund M; Department of Women's and Children's Health, Uppsala University, Sweden., Scott Duncan T; Department of Women's and Children's Health, Uppsala University, Sweden., Hagström J; Department of Women's and Children's Health, Uppsala University, Sweden., Kujala S; Department of Computer Science, Aalto University, Finland., Dudkina A; Department of Health Technologies, TalTech, Tallinn, Estonia., Moll J; Informatics, School of Business Örebro University, Örebro, Sweden., Kharko A; Department of Women's and Children's Health, Uppsala University, Sweden., Johansen MA; Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway., Blease C; Department of Women's and Children's Health, Uppsala University, Sweden.
Quelle: Studies in health technology and informatics [Stud Health Technol Inform] 2025 Oct 02; Vol. 332, pp. 216-220.
Publikationsart: Journal Article
Sprache: English
Info zur Zeitschrift: Publisher: IOS Press Country of Publication: Netherlands NLM ID: 9214582 Publication Model: Print Cited Medium: Internet ISSN: 1879-8365 (Electronic) Linking ISSN: 09269630 NLM ISO Abbreviation: Stud Health Technol Inform Subsets: MEDLINE
Imprint Name(s): Original Publication: Amsterdam ; Washington, DC : IOS Press, 1991-
MeSH-Schlagworte: Electronic Health Records*/statistics & numerical data , Patient Access to Records*/statistics & numerical data , Access to Information* , Proxy*, Humans ; Adult ; Europe ; Estonia ; Finland ; Sweden ; Norway
Abstract: Patients' online record access (ORA) enables patients to involve their informal caregivers in care management by sharing health information, either through proxy access functionality or informally. The European Health Data Space mandates that member countries should ensure that patients can assign a proxy to have online access to their health data. In this study, we aimed to explore the current state of proxy ORA in four countries with mature ORA implementations; Sweden, Norway, Finland, and Estonia. We identified three types of proxy ORA; full proxy ORA, no proxy ORA, and controlled proxy ORA. Further guidance on ethically sound and secure proxy ORA functionality that complies with national and EU regulations and policies is warranted to ensure equal rights for citizens across Europe.
Contributed Indexing: Keywords: Electronic Health Record; Information Sharing; Patient Portal; Patients’ Online Record Access; Proxy Access
Entry Date(s): Date Created: 20251003 Date Completed: 20251003 Latest Revision: 20251003
Update Code: 20251003
DOI: 10.3233/SHTI251530
PMID: 41041777
Datenbank: MEDLINE
Beschreibung
Abstract:Patients' online record access (ORA) enables patients to involve their informal caregivers in care management by sharing health information, either through proxy access functionality or informally. The European Health Data Space mandates that member countries should ensure that patients can assign a proxy to have online access to their health data. In this study, we aimed to explore the current state of proxy ORA in four countries with mature ORA implementations; Sweden, Norway, Finland, and Estonia. We identified three types of proxy ORA; full proxy ORA, no proxy ORA, and controlled proxy ORA. Further guidance on ethically sound and secure proxy ORA functionality that complies with national and EU regulations and policies is warranted to ensure equal rights for citizens across Europe.
ISSN:1879-8365
DOI:10.3233/SHTI251530