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Making qualitative research accessible to people who have communication disability.

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Title: Making qualitative research accessible to people who have communication disability.
Authors: Pennacchia JM; Department of Paediatrics, University of Melbourne, 50 Flemington Rd, Parkville 3052, Australia; Neurodisability and Rehabilitation, Murdoch Children's Research Institute, 50 Flemington Rd, Parkville 3052, Australia; School of Health and Welfare, Jönköping University, Barnarpsgatan 39, Jönköping 553 33, Sweden. Electronic address: jpennacchia@student.unimelb.edu.au., Bonyhady G; Neurodisability and Rehabilitation, Murdoch Children's Research Institute, 50 Flemington Rd, Parkville 3052, Australia., Wong S; Neurodisability and Rehabilitation, Murdoch Children's Research Institute, 50 Flemington Rd, Parkville 3052, Australia., Pacheco C; Neurodisability and Rehabilitation, Murdoch Children's Research Institute, 50 Flemington Rd, Parkville 3052, Australia., Coghill D; Department of Paediatrics, University of Melbourne, 50 Flemington Rd, Parkville 3052, Australia; Neurodisability and Rehabilitation, Murdoch Children's Research Institute, 50 Flemington Rd, Parkville 3052, Australia., Granlund M; School of Health and Welfare, Jönköping University, Barnarpsgatan 39, Jönköping 553 33, Sweden., Imms C; Department of Paediatrics, University of Melbourne, 50 Flemington Rd, Parkville 3052, Australia; Neurodisability and Rehabilitation, Murdoch Children's Research Institute, 50 Flemington Rd, Parkville 3052, Australia; Healthy Trajectories Child and Youth Disability Research Hub, Melbourne Children's Campus, 50 Flemington Rd, Parkville 3052, Australia.
Source: Research in developmental disabilities [Res Dev Disabil] 2025 Oct; Vol. 165, pp. 105108. Date of Electronic Publication: 2025 Sep 17.
Publication Type: Journal Article
Language: English
Journal Info: Publisher: Pergamon Press Country of Publication: United States NLM ID: 8709782 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-3379 (Electronic) Linking ISSN: 08914222 NLM ISO Abbreviation: Res Dev Disabil Subsets: MEDLINE
Imprint Name(s): Original Publication: New York : Pergamon Press, c1987-
MeSH Terms: Communication Disorders*/psychology , Qualitative Research*, Humans ; Community Participation ; Communication ; Persons with Disabilities
Abstract: Competing Interests: Declaration of Competing Interest The authors have no competing interests to declare.
People with communication disability are often excluded from participating directly in research. This systematic exclusion from relevant research has a significant impact on the field's knowledge and limits the development of effective evidence-based practices. The purpose of this descriptive methods paper is to equip researchers with knowledge required to address the needs of people with communication disability, increasing the likelihood of their rights-based inclusion in research. In this paper, we combine what has been learned from the literature with content derived from a study that is currently underway. Using images and transcript excerpts as examples, we will describe practical methods to action recommendations. Three pillars of communication accessible research are proposed-participatory attitudes, flexibility and responsivity, and consumer involvement-which will empower researchers to make their own projects more inclusive to people with communication disability.
(Copyright © 2025 The Authors. Published by Elsevier Ltd.. All rights reserved.)
Contributed Indexing: Keywords: AAC; Accessible research; Codesign; Communication access; Communication disability; Complex communication needs; Qualitative research
Entry Date(s): Date Created: 20250918 Date Completed: 20251006 Latest Revision: 20251006
Update Code: 20251007
DOI: 10.1016/j.ridd.2025.105108
PMID: 40966988
Database: MEDLINE
Description
Abstract:Competing Interests: Declaration of Competing Interest The authors have no competing interests to declare.<br />People with communication disability are often excluded from participating directly in research. This systematic exclusion from relevant research has a significant impact on the field's knowledge and limits the development of effective evidence-based practices. The purpose of this descriptive methods paper is to equip researchers with knowledge required to address the needs of people with communication disability, increasing the likelihood of their rights-based inclusion in research. In this paper, we combine what has been learned from the literature with content derived from a study that is currently underway. Using images and transcript excerpts as examples, we will describe practical methods to action recommendations. Three pillars of communication accessible research are proposed-participatory attitudes, flexibility and responsivity, and consumer involvement-which will empower researchers to make their own projects more inclusive to people with communication disability.<br /> (Copyright © 2025 The Authors. Published by Elsevier Ltd.. All rights reserved.)
ISSN:1873-3379
DOI:10.1016/j.ridd.2025.105108