Development of a Tool to Measure the Dyadic Process of Shared Decision Making in Young Children: The Making Decisions for Kids (MADE for Kids) Survey.
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| Názov: | Development of a Tool to Measure the Dyadic Process of Shared Decision Making in Young Children: The Making Decisions for Kids (MADE for Kids) Survey. |
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| Autori: | Opel DJ; Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute, Seattle, WA, USA., Ayala E; Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute, Seattle, WA, USA., Spielvogle H; Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute, Seattle, WA, USA., Ibrahim A; Bioethics Program, Lurie Children's Hospital, Chicago, IL, USA., Orr O; Bioethics Program, Lurie Children's Hospital, Chicago, IL, USA., Beretta A; Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute, Seattle, WA, USA., Kroshus E; Center for Child Health, Behavior, and Development, Seattle Children's Research Institute, Seattle, WA, USA., Weiss EM; Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute, Seattle, WA, USA., Zhou C; Center for Child Health, Behavior, and Development, Seattle Children's Research Institute, Seattle, WA, USA., Shah SK; Bioethics Program, Lurie Children's Hospital, Chicago, IL, USA. |
| Zdroj: | Medical decision making : an international journal of the Society for Medical Decision Making [Med Decis Making] 2025 Oct; Vol. 45 (7), pp. 834-848. Date of Electronic Publication: 2025 Aug 08. |
| Spôsob vydávania: | Journal Article |
| Jazyk: | English |
| Informácie o časopise: | Publisher: Sage Publications Country of Publication: United States NLM ID: 8109073 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1552-681X (Electronic) Linking ISSN: 0272989X NLM ISO Abbreviation: Med Decis Making Subsets: MEDLINE |
| Imprint Name(s): | Publication: <2001->: Thousand Oaks, CA : Sage Publications Original Publication: Cambridge, MA : Birkhäuser, c1981- |
| Výrazy zo slovníka MeSH: | Decision Making, Shared* , Psychometrics*/instrumentation , Psychometrics*/methods, Humans ; Surveys and Questionnaires ; Female ; Male ; Parents/psychology ; Child, Preschool ; Child ; Reproducibility of Results ; Decision Making |
| Abstrakt: | Competing Interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article. The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Financial support for this study was provided entirely by a grant from the Agency for Healthcare Research and Quality (award No. 1R01HS029142-01A1; principal investigator: Opel). The funding agreement ensured the authors’ independence in designing the study, interpreting the data, writing, and publishing the report. BackgroundIncorporating clinician and patient perspectives in the measurement of shared decision making (SDM) is aligned with SDM's inherently dyadic nature. There are no tools measuring SDM in pediatrics from multiple perspectives. The objective of this study was to develop a tool to measure SDM from the perspectives of both clinicians and parents of young children.DesignWe used a stepwise iterative approach to tool development beginning with de novo item generation and followed by augmentation of the item pool by adapting items from existing instruments. After the study team removed redundant items, 3 parents and 3 SDM experts rated the remaining items for their ability to capture SDM in pediatrics; items with the lowest mean ratings were removed. To assess the preliminary tool's face validity, usability, and item understandability, we pretested it, revising it iteratively, with sequential cohorts of English-speaking parents and clinicians from 2 US children's hospitals.ResultsWe generated an initial list of 28 items for the parent and clinician versions of the tool, which we reduced to 20 items after preliminary review. After review by parents and SDM experts, we cut 9 items and added 1 additional item for a total of 12 items. We pretested the preliminary tool with 31 clinicians and 30 parents across 3 sequential cohorts. The final tool contained 12 items and an optional free-text item.LimitationsAll participants were English speaking, limiting its generalizability.ConclusionsWe have developed a usable preliminary tool for measuring the dyadic process of SDM in pediatrics.ImplicationsThis tool represents an important first step toward addressing the measurement of SDM in pediatrics from multiple perspectives.HighlightsIn this study, we have developed the first shared decision making (SDM) tool specifically for use with parents of young children.Although further study is needed to determine the psychometric properties of this tool, it has the potential to address an important gap in our ability to measure SDM in pediatrics from multiple perspectives. |
| Contributed Indexing: | Keywords: doctor-patient communication; pediatrics; shared decision-making |
| Entry Date(s): | Date Created: 20250809 Date Completed: 20250908 Latest Revision: 20250908 |
| Update Code: | 20250908 |
| DOI: | 10.1177/0272989X251353216 |
| PMID: | 40781752 |
| Databáza: | MEDLINE |
Nájsť tento článok vo Web of Science | Abstrakt: | Competing Interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article. The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Financial support for this study was provided entirely by a grant from the Agency for Healthcare Research and Quality (award No. 1R01HS029142-01A1; principal investigator: Opel). The funding agreement ensured the authors’ independence in designing the study, interpreting the data, writing, and publishing the report.<br />BackgroundIncorporating clinician and patient perspectives in the measurement of shared decision making (SDM) is aligned with SDM's inherently dyadic nature. There are no tools measuring SDM in pediatrics from multiple perspectives. The objective of this study was to develop a tool to measure SDM from the perspectives of both clinicians and parents of young children.DesignWe used a stepwise iterative approach to tool development beginning with de novo item generation and followed by augmentation of the item pool by adapting items from existing instruments. After the study team removed redundant items, 3 parents and 3 SDM experts rated the remaining items for their ability to capture SDM in pediatrics; items with the lowest mean ratings were removed. To assess the preliminary tool's face validity, usability, and item understandability, we pretested it, revising it iteratively, with sequential cohorts of English-speaking parents and clinicians from 2 US children's hospitals.ResultsWe generated an initial list of 28 items for the parent and clinician versions of the tool, which we reduced to 20 items after preliminary review. After review by parents and SDM experts, we cut 9 items and added 1 additional item for a total of 12 items. We pretested the preliminary tool with 31 clinicians and 30 parents across 3 sequential cohorts. The final tool contained 12 items and an optional free-text item.LimitationsAll participants were English speaking, limiting its generalizability.ConclusionsWe have developed a usable preliminary tool for measuring the dyadic process of SDM in pediatrics.ImplicationsThis tool represents an important first step toward addressing the measurement of SDM in pediatrics from multiple perspectives.HighlightsIn this study, we have developed the first shared decision making (SDM) tool specifically for use with parents of young children.Although further study is needed to determine the psychometric properties of this tool, it has the potential to address an important gap in our ability to measure SDM in pediatrics from multiple perspectives. |
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| ISSN: | 1552-681X |
| DOI: | 10.1177/0272989X251353216 |