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What matters most in Cirebon, Indonesia: cultural nuances to health-related stigma.

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Bibliographic Details
Title: What matters most in Cirebon, Indonesia: cultural nuances to health-related stigma.
Authors: Sopamena Y; Athena Institute, Faculty of Science, VU Amsterdam, Amsterdam, The Netherlands.; Department of Health Education and Behavioral Sciences, Faculty of Public Health, Universitas Indonesia, Depok, Indonesia., Sutiawan R; Department of Biostatistics and Population Studies, Faculty of Public Health, Universitas Indonesia, Depok, Indonesia., Visser MJ; Athena Institute, Faculty of Science, VU Amsterdam, Amsterdam, The Netherlands., Dadun D; Center for Health Research, Faculty of Public Health, Universitas Indonesia, Depok, Indonesia., Damayanti R; Department of Health Education and Behavioral Sciences, Faculty of Public Health, Universitas Indonesia, Depok, Indonesia., Anshari D; Department of Health Education and Behavioral Sciences, Faculty of Public Health, Universitas Indonesia, Depok, Indonesia., Yang L; Department of Social and Behavioral Sciences, School of Global Public Health, New York University, New York City, NY, USA.; School of Nursing, Duke University, Durham, NC, USA., Peters RMH; Athena Institute, Faculty of Science, VU Amsterdam, Amsterdam, The Netherlands., Zweekhorst MBM; Athena Institute, Faculty of Science, VU Amsterdam, Amsterdam, The Netherlands.
Source: Global public health [Glob Public Health] 2025 Dec; Vol. 20 (1), pp. 2497918. Date of Electronic Publication: 2025 May 05.
Publication Type: Journal Article
Language: English
Journal Info: Publisher: Informa Healthcare Country of Publication: England NLM ID: 101256323 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1744-1706 (Electronic) Linking ISSN: 17441692 NLM ISO Abbreviation: Glob Public Health Subsets: MEDLINE
Imprint Name(s): Publication: London : Informa Healthcare
Original Publication: Abingdon, UK : Routledge, c2006-
MeSH Terms: Social Stigma*, Humans ; Indonesia ; Female ; Male ; Focus Groups ; Adult ; Middle Aged ; Qualitative Research ; Interviews as Topic ; Leprosy/psychology ; Leprosy/ethnology ; Young Adult
Abstract: Individuals with stigmatised health conditions face adverse attitudes, social exclusion and discrimination, stemming from preconceived notions about the condition and its associated symptoms or links to disability. Culture plays a role in shaping stigma manifestations. By employing the 'what matters most' framework, this study sought to capture perspectives of men and women living with leprosy, lymphatic filariasis or depressive disorder, and of their families and healthcare providers, regarding key cultural capabilities that 'matter most' for men and women in Cirebon Regency, Indonesia. A total of 91 respondents participated in 45 interviews and 10 focus group discussions. Data were analysed using thematic content analysis and the analysis generated three core cultural themes defined as 'what matters most' in Cirebon Regency: personal responsibilities, marriage and family responsibilities, and community responsibilities. Specifically, recovery-oriented attitudes, family support and community engagement were identified as key cultural engagements that could help people with stigmatised conditions to maintain personhood and mitigate health-related stigma. In conclusion, our findings highlight it is important to consider these cultural capabilities in stigma research, particularly in the design of stigma assessment and stigma-reduction interventions.
Contributed Indexing: Keywords: Indonesia; SDG 10: Reduced inequalities; SDG 1: No poverty; SDG 3: Good health and well-being; SDG 5: Gender equality; Stigma; culture; gender; what matters most
Entry Date(s): Date Created: 20250505 Date Completed: 20250505 Latest Revision: 20250505
Update Code: 20250505
DOI: 10.1080/17441692.2025.2497918
PMID: 40322876
Database: MEDLINE
Description
Abstract:Individuals with stigmatised health conditions face adverse attitudes, social exclusion and discrimination, stemming from preconceived notions about the condition and its associated symptoms or links to disability. Culture plays a role in shaping stigma manifestations. By employing the 'what matters most' framework, this study sought to capture perspectives of men and women living with leprosy, lymphatic filariasis or depressive disorder, and of their families and healthcare providers, regarding key cultural capabilities that 'matter most' for men and women in Cirebon Regency, Indonesia. A total of 91 respondents participated in 45 interviews and 10 focus group discussions. Data were analysed using thematic content analysis and the analysis generated three core cultural themes defined as 'what matters most' in Cirebon Regency: personal responsibilities, marriage and family responsibilities, and community responsibilities. Specifically, recovery-oriented attitudes, family support and community engagement were identified as key cultural engagements that could help people with stigmatised conditions to maintain personhood and mitigate health-related stigma. In conclusion, our findings highlight it is important to consider these cultural capabilities in stigma research, particularly in the design of stigma assessment and stigma-reduction interventions.
ISSN:1744-1706
DOI:10.1080/17441692.2025.2497918