Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research

Biobanks have evolved, and their governance procedures have undergone important transformations. Our paper examines this issue by focusing on the perspective of the professionals working in management or scientific roles in research-based biobanks, who have an important impact on shaping these trans...

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Vydáno v:	PloS one Ročník 14; číslo 9; s. e0221496
Hlavní autoři:	Goisauf, Melanie, Martin, Gillian, Bentzen, Heidi Beate, Budin-Ljøsne, Isabelle, Ursin, Lars, Durnová, Anna, Leitsalu, Liis, Smith, Katharine, Casati, Sara, Lavitrano, Marialuisa, Mascalzoni, Deborah, Boeckhout, Martin, Mayrhofer, Michaela Th
Médium:	Journal Article
Jazyk:	angličtina
Vydáno:	United States Public Library of Science 18.09.2019 Public Library of Science (PLoS)
Témata:	Attitudes Biological Specimen Banks Biology and Life Sciences Biomedical research Biomedical Research - ethics Biomedical Research - legislation & jurisprudence Communication Computer and Information Sciences Consent Data processing Ethics Europe Genetic research Genomics Humans Informed consent Informed Consent - ethics Internet Medical research Medicine Medicine and Health Sciences Partnerships Planning Polls & surveys Public health Public-private sector cooperation Research and Analysis Methods Researchers Social Sciences Surveys Surveys and Questionnaires Technology application Transformations Europe Norway Italy Austria
ISSN:	1932-6203, 1932-6203
On-line přístup:	Získat plný text
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