The Quality of Dying and Death Questionnaire (QODD): Empirical Domains and Theoretical Perspectives
We used exploratory factor analysis within the confirmatory analysis framework, and data provided by family members and friends of 205 decedents in Missoula, Montana, to construct a model of latent-variable domains underlying the Quality of Dying and Death questionnaire (QODD). We then used data fro...
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| Vydáno v: | Journal of pain and symptom management Ročník 39; číslo 1; s. 9 - 22 |
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| Hlavní autoři: | , , , , |
| Médium: | Journal Article |
| Jazyk: | angličtina |
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New York, NY
Elsevier Inc
01.01.2010
Elsevier |
| Témata: | |
| ISSN: | 0885-3924, 1873-6513, 1873-6513 |
| On-line přístup: | Získat plný text |
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| Abstract | We used exploratory factor analysis within the confirmatory analysis framework, and data provided by family members and friends of 205 decedents in Missoula, Montana, to construct a model of latent-variable domains underlying the Quality of Dying and Death questionnaire (QODD). We then used data from 182 surrogate respondents, who were survivors of Seattle decedents, to verify the latent-variable structure. Results from the two samples suggested that survivors' retrospective ratings of 13 specific aspects of decedents' end-of-life experience served as indicators of four correlated, but distinct, latent-variable domains: Symptom Control, Preparation, Connectedness, and Transcendence. A model testing a unidimensional domain structure exhibited unsatisfactory fit to the data, implying that a single global quality measure of dying and death may provide insufficient evidence for guiding clinical practice, evaluating interventions to improve quality of care or assessing the status or trajectory of individual patients. In anticipation of possible future research tying the quality of dying and death to theoretical constructs, we linked the inferred domains to concepts from identity theory and existential psychology. We conclude that research based on the current version of the QODD might benefit from the use of composite measures representing the four identified domains, but that future expansion and modification of the questionnaire are in order. |
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| AbstractList | We used exploratory factor analysis within the confirmatory analysis framework, and data provided by family members and friends of 205 decedents in Missoula, Montana, to construct a model of latent-variable domains underlying the Quality of Dying and Death questionnaire (QODD). We then used data from 182 surrogate respondents, who were survivors of Seattle decedents, to verify the latent-variable structure. Results from the two samples suggested that survivors' retrospective ratings of 13 specific aspects of decedents' end-of-life experience served as indicators of four correlated, but distinct, latent-variable domains: Symptom Control, Preparation, Connectedness, and Transcendence. A model testing a unidimensional domain structure exhibited unsatisfactory fit to the data, implying that a single global quality measure of dying and death may provide insufficient evidence for guiding clinical practice, evaluating interventions to improve quality of care or assessing the status or trajectory of individual patients. In anticipation of possible future research tying the quality of dying and death to theoretical constructs, we linked the inferred domains to concepts from identity theory and existential psychology. We conclude that research based on the current version of the QODD might benefit from the use of composite measures representing the four identified domains, but that future expansion and modification of the questionnaire are in order.We used exploratory factor analysis within the confirmatory analysis framework, and data provided by family members and friends of 205 decedents in Missoula, Montana, to construct a model of latent-variable domains underlying the Quality of Dying and Death questionnaire (QODD). We then used data from 182 surrogate respondents, who were survivors of Seattle decedents, to verify the latent-variable structure. Results from the two samples suggested that survivors' retrospective ratings of 13 specific aspects of decedents' end-of-life experience served as indicators of four correlated, but distinct, latent-variable domains: Symptom Control, Preparation, Connectedness, and Transcendence. A model testing a unidimensional domain structure exhibited unsatisfactory fit to the data, implying that a single global quality measure of dying and death may provide insufficient evidence for guiding clinical practice, evaluating interventions to improve quality of care or assessing the status or trajectory of individual patients. In anticipation of possible future research tying the quality of dying and death to theoretical constructs, we linked the inferred domains to concepts from identity theory and existential psychology. We conclude that research based on the current version of the QODD might benefit from the use of composite measures representing the four identified domains, but that future expansion and modification of the questionnaire are in order. We used exploratory factor analysis within the confirmatory analysis framework, and data provided by family members and friends of 205 decedents in Missoula, Montana, to construct a model of latent-variable domains underlying the Quality of Dying and Death questionnaire (QODD). We then used data from 182 surrogate respondents, who were survivors of Seattle decedents, to verify the latent-variable structure. Results from the two samples suggested that survivors' retrospective ratings of 13 specific aspects of decedents' end-of-life experience served as indicators of four correlated, but distinct, latent-variable domains: Symptom Control, Preparation, Connectedness, and Transcendence. A model testing a unidimensional domain structure exhibited unsatisfactory fit to the data, implying that a single global quality measure of dying and death may provide insufficient evidence for guiding clinical practice, evaluating interventions to improve quality of care or assessing the status or trajectory of individual patients. In anticipation of possible future research tying the quality of dying and death to theoretical constructs, we linked the inferred domains to concepts from identity theory and existential psychology. We conclude that research based on the current version of the QODD might benefit from the use of composite measures representing the four identified domains, but that future expansion and modification of the questionnaire are in order. Quantitative research in the USA examining the correlation of QODD questionnaire domains with global ratings of quality of death from the perspective of decendents' survivors. The inclusion of measures to represent the domains of symptom control, preparation, connectedness and transcendence is considered. [(BNI unique abstract)] 65 references Abstract We used exploratory factor analysis within the confirmatory analysis framework, and data provided by family members and friends of 205 decedents in Missoula, Montana, to construct a model of latent-variable domains underlying the Quality of Dying and Death questionnaire (QODD). We then used data from 182 surrogate respondents, who were survivors of Seattle decedents, to verify the latent-variable structure. Results from the two samples suggested that survivors' retrospective ratings of 13 specific aspects of decedents' end-of-life experience served as indicators of four correlated, but distinct, latent-variable domains: Symptom Control, Preparation, Connectedness, and Transcendence. A model testing a unidimensional domain structure exhibited unsatisfactory fit to the data, implying that a single global quality measure of dying and death may provide insufficient evidence for guiding clinical practice, evaluating interventions to improve quality of care or assessing the status or trajectory of individual patients. In anticipation of possible future research tying the quality of dying and death to theoretical constructs, we linked the inferred domains to concepts from identity theory and existential psychology. We conclude that research based on the current version of the QODD might benefit from the use of composite measures representing the four identified domains, but that future expansion and modification of the questionnaire are in order. We used exploratory factor analysis within the confirmatory analysis framework, and data provided by family members and friends of 205 decedents in Missoula, Montana, to construct a model of latent variable domains underlying the Quality of Dying and Death (QODD) questionnaire. We then used data from 182 surrogate respondents, representing Seattle decedents, to verify the latent variable structure. Results from the two samples suggested that survivors’ retrospective ratings of 13 specific aspects of decedents’ end-of-life experience served as indicators of four correlated, but distinct, latent variable domains: symptom control, preparation, connectedness, and transcendence. A model testing a unidimensional domain structure exhibited unsatisfactory fit to the data, implying that a single global quality measure of dying and death may provide insufficient evidence for guiding clinical practice, evaluating interventions to improve quality of care, or assessing the status or trajectory of individual patients. In anticipation of possible future research tying the quality of dying and death to theoretical constructs, we linked the inferred domains to concepts from Identity Theory and Existential Psychology. We conclude that research based on the current version of the QODD questionnaire might benefit from use of composite measures representing the four identified domains, but that future expansion and modification of the QODD are in order. We used exploratory factor analysis within the confirmatory analysis framework, and data provided by family members and friends of 205 decedents in Missoula, Montana, to construct a model of latent-variable domains underlying the Quality of Dying and Death questionnaire (QODD). We then used data from 182 surrogate respondents, who were survivors of Seattle decedents, to verify the latent-variable structure. Results from the two samples suggested that survivors' retrospective ratings of 13 specific aspects of decedents' end-of-life experience served as indicators of four correlated, but distinct, latent-variable domains: Symptom Control, Preparation, Connectedness, and Transcendence. A model testing a unidimensional domain structure exhibited unsatisfactory fit to the data, implying that a single global quality measure of dying and death may provide insufficient evidence for guiding clinical practice, evaluating interventions to improve quality of care or assessing the status or trajectory of individual patients. In anticipation of possible future research tying the quality of dying and death to theoretical constructs, we linked the inferred domains to concepts from identity theory and existential psychology. We conclude that research based on the current version of the QODD might benefit from the use of composite measures representing the four identified domains, but that future expansion and modification of the questionnaire are in order. [Copyright U.S. Cancer Pain Relief Committee. Published by Elsevier Inc.] |
| Author | Curtis, J. Randall Herting, Jerald R. Engelberg, Ruth A. Lafferty, William E. Downey, Lois |
| Author_xml | – sequence: 1 givenname: Lois surname: Downey fullname: Downey, Lois email: ldowney@u.washington.edu organization: Division of Pulmonary and Critical Care Medicine, Department of Medicine, Harborview Medical Center, University of Washington, Seattle, Washington, USA – sequence: 2 givenname: J. Randall surname: Curtis fullname: Curtis, J. Randall organization: Division of Pulmonary and Critical Care Medicine, Department of Medicine, Harborview Medical Center, University of Washington, Seattle, Washington, USA – sequence: 3 givenname: William E. surname: Lafferty fullname: Lafferty, William E. organization: Office of Health Services and Public Health Outcomes Research, University of Missouri-Kansas City, Kansas City, Missouri, USA – sequence: 4 givenname: Jerald R. surname: Herting fullname: Herting, Jerald R. organization: Department of Psychosocial and Community Health, School of Nursing, University of Washington, Seattle, Washington, USA – sequence: 5 givenname: Ruth A. surname: Engelberg fullname: Engelberg, Ruth A. organization: Division of Pulmonary and Critical Care Medicine, Department of Medicine, Harborview Medical Center, University of Washington, Seattle, Washington, USA |
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| ContentType | Journal Article |
| Copyright | 2010 U.S. Cancer Pain Relief Committee U.S. Cancer Pain Relief Committee 2015 INIST-CNRS Copyright 2010 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved. Copyright 2010 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved. 2009 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved. 2009 |
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| Keywords | end of life good death bad death confirmatory factor analysis quality of death quality of dying palliative care latent-variable domains Quality of life Factor analysis Questionnaire Mortality Palliative care Death |
| Language | English |
| License | CC BY 4.0 Copyright 2010 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved. |
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| SubjectTerms | Anesthesia & Perioperative Care Attitude to Death bad death Bereavement Biological and medical sciences confirmatory factor analysis Death Dying end of life Factor Analysis, Statistical Family good death Health Care Surveys Hospices Humans Identity theory Interventions latent-variable domains Medical sciences Pain Medicine Palliative Care Patient Satisfaction Pharmacology. Drug treatments Quality of care quality of death quality of dying Quality of Life Social Support Surveys and Questionnaires Survivors Terminal Care |
| Title | The Quality of Dying and Death Questionnaire (QODD): Empirical Domains and Theoretical Perspectives |
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