Italian cross-cultural adaptation of the Quality of Communication questionnaire and the 4-item advance care planning engagement questionnaire

Advance care planning (ACP) is influenced by several factors (e.g., patient's readiness to engage, clinician's skills, and the cultural environment). Availability of reliable and valid self-reported measures of the ACP domains is crucial, including cross-cultural equivalence. To culturally...

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Vydané v:PloS one Ročník 18; číslo 3; s. e0282960
Hlavní autori: De Panfilis, Ludovica, Veronese, Simone, Perin, Marta, Cascioli, Marta, Farinotti, Mariangela, Kruger, Paola, Zagarella, Roberta M., Curtis, J. R., Sudore, Rebecca L., Nielsen, Elizabeth L., Engelberg, Ruth A., Giordano, Andrea, Solari, Alessandra
Médium: Journal Article
Jazyk:English
Vydavateľské údaje: United States Public Library of Science 23.03.2023
Public Library of Science (PLoS)
Predmet:
Adaptation
Advance Care Planning
Advance directives
Biology and Life Sciences
Cognitive ability
Communication
Cross-Cultural Comparison
Decision making
Documentation
End of life
Equivalence
Evaluation
Feedback
Humans
Interpreters
Italy
Legislation
Medicine and Health Sciences
Methods
Multiple sclerosis
Palliative care
Palliative treatment
Patients
People and Places
Planning
Professionals
Psychometrics
Questionnaires
Research and Analysis Methods
Services
Social Sciences
Surveys and Questionnaires
Translations
Translations and translating
Values
Verbal communication
Italy
United States > US
ISSN:1932-6203, 1932-6203
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Shrnutí:Advance care planning (ACP) is influenced by several factors (e.g., patient's readiness to engage, clinician's skills, and the cultural environment). Availability of reliable and valid self-reported measures of the ACP domains is crucial, including cross-cultural equivalence. To culturally adapt into Italian the 19-item Quality of Communication (QOC) and the 4-item ACP Engagement (4-item ACP-E) questionnaires. We translated and culturally adapted the two questionnaires and produced a significant other (SO) version of the QOC (QOC-SO). Each questionnaire was field tested via cognitive interviews with users: nine patients (QOC, 4-item ACP-E) and three SOs (QOC-SO) enrolled at three palliative care services. We made minor changes to 5/19 QOC items, to improve clarity and internal consistency; we changed the response option 'didn't do' into 'not applicable'. Finally, we slightly revised the QOC to adapt it to the paper/electronic format. QOC debriefing revealed that the section on end of life was emotionally challenging for both patients and SOs. We simplified the 4-item ACP-E layout, added a sentence in the introduction, and revised the wording of one item, to improve coherence with the Italian ACP legislation. ACP-E debriefing did not reveal any major issue. Results were satisfactory in terms of semantic, conceptual and normative equivalence of both questionnaires. Acceptability was satisfactory for the 4-item ACP-E, while findings of the QOC cognitive debriefing informed a major amendment of a pilot trial protocol on ACP in multiple sclerosis (ConCure-SM): use of the interviewer version only, in an adaptive form. Psychometric testing of both questionnaires on a large, independent sample will follow.
Bibliografia:ObjectType-Article-1
SourceType-Scholarly Journals-1
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Competing Interests: A.S. reports grants from the Italian Multiple Sclerosis Foundation (FISM) and the European Academy of Neurology, during the conduct of the study; she serves as board member for Merck Serono, and received personal fees from Almirall and Merck Serono, outside the submitted work. This does not alter our adherence to PLOS ONE policies on sharing data and materials.
Membership of the ConCure-SM project is listed in the Acknowledgments.
ISSN:1932-6203
1932-6203
DOI:10.1371/journal.pone.0282960