Brief Report: Under-Representation of African Americans in Autism Genetic Research: A Rationale for Inclusion of Subjects Representing Diverse Family Structures

African American children with autism are seriously under-represented in existing genetic registries and biomedical research studies of autism. We estimated the number of African American children with autism in the St. Louis region using CDC surveillance data and present the outcomes of a concerted...

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Vydané v:	Journal of autism and developmental disorders Ročník 40; číslo 5; s. 633 - 639
Hlavní autori:	Hilton, Claudia L., Fitzgerald, Robert T., Jackson, Kelley M., Maxim, Rolanda A., Bosworth, Christopher C., Shattuck, Paul T., Geschwind, Daniel H., Constantino, John N.
Médium:	Journal Article
Jazyk:	English
Vydavateľské údaje:	Boston Springer US 01.05.2010 Springer Springer Nature B.V
Predmet:	Adolescent African American Children African American Students African Americans Autism Autism Spectrum Disorders Autistic children Autistic Disorder - ethnology Autistic Disorder - psychology Behavioral Science and Psychology Biological and medical sciences Biomedicine Black or African American - psychology Black or African American - statistics & numerical data Black youth Brief Report Child Child Abuse Child and School Psychology Child clinical studies Child, Preschool Children Developmental Disabilities Developmental disorders Disproportionate Representation Educational Quality Eligibility Ethnicity Families & family life Family Family Characteristics - ethnology Family Structure Female Genetic aspects Genetic Research Genetics Humans Infant Infantile autism Male Marginality Medical research Medical sciences Medical Services Minority Group Children Missouri - ethnology Neurosciences Participation Pediatrics Psychiatry Psychology Psychology. Psychoanalysis. Psychiatry Psychopathology. Psychiatry Public Health Registries - statistics & numerical data Research Needs Research Subjects Schizophrenia Scientific Research Surveillance Whites Missouri Ethnicity Minority representation African American Social environment Human Developmental disorder Group structure Ethnic group Autism Minority Scientific research Family environment Genetics
ISSN:	0162-3257, 1573-3432, 1573-3432
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Shrnutí:	African American children with autism are seriously under-represented in existing genetic registries and biomedical research studies of autism. We estimated the number of African American children with autism in the St. Louis region using CDC surveillance data and present the outcomes of a concerted effort to enroll approximately one-third of that population into either of two large national genetic autism registries. The results revealed that even after traditional barriers to research participation were addressed and all contacted families expressed a willingness to participate, 67% of the reachable families were disqualified from participation because of family structure alone. Comprehensive efforts—including expansion of eligibility to families of diverse structure—are warranted to facilitate the inclusion of African American children in biomedical research.
Bibliografia:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 14 content type line 23 ObjectType-Article-2 ObjectType-Feature-1
ISSN:	0162-3257 1573-3432 1573-3432
DOI:	10.1007/s10803-009-0905-2