‘I felt like a human being’—An exploratory, multi‐method study of refugee involvement in the development of mental health intervention research

Background Great advancements have been made in patient and public involvement (PPI), including the development of guidance on how to conduct, report and evaluate PPI. Despite these efforts, the evidence base remains relatively weak. A substantive methodological development is required. This is part...

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Vydáno v:	Health expectations : an international journal of public participation in health care and health policy Ročník 24; číslo S1; s. 30 - 39
Hlavní autoři:	Warner, Georgina, Baghdasaryan, Zaruhi, Osman, Fatumo, Lampa, Elin, Sarkadi, Anna
Médium:	Journal Article
Jazyk:	angličtina
Vydáno:	England John Wiley & Sons, Inc 01.05.2021 John Wiley and Sons Inc Wiley
Témata:	Advisors Appreciation At risk populations Brief interventions Case studies Child Citizen participation Clinical trials Cognitive development Communication Dynamic characteristics Empowerment Equality Feasibility Group dynamics Health promotion Health research Human subjects Humans Intervention Linguistics Medical research Mental Health Mental health care Mental Health Services Methodological approaches Methods Mixed methods research observation patient and public involvement Patient Participation Patients Post traumatic stress disorder Public involvement Questionnaires R&D Randomized Controlled Trials as Topic Refugees Research & development Research Design Research methodology Researchers Schedules Social integration Special Issue on Mental Health Special Issue Paper Trauma Traumatic stress Validity group dynamics refugees patient and public involvement mental health observation
ISSN:	1369-6513, 1369-7625, 1369-7625
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Popis
Shrnutí:	Background Great advancements have been made in patient and public involvement (PPI), including the development of guidance on how to conduct, report and evaluate PPI. Despite these efforts, the evidence base remains relatively weak. A substantive methodological development is required. This is particularly important for vulnerable groups within society, for whom PPI can be challenging but has the potential to play a transformative role in shaping research. Objectives To describe the group dynamic characteristics and immediate impact of PPI from the user representatives’ perspective in a case study of refugee involvement in the development of mental health intervention research. To pilot and methodologically appraise the Active Involvement of Users in Research Observation Schedule and Questionnaire. Design The Active Involvement of Users in Research Observation Schedule and Questionnaire were administered together with a focus group discussion. Setting ‘Refugee Advisors’ were involved in the development of a randomized controlled trial protocol evaluating a brief group intervention for refugee children experiencing symptoms of post‐traumatic stress in Sweden. Results The multi‐method approach demonstrated good feasibility. There were clear examples of how the advisors influenced research development. The advisors described a perceived impact on the research, equality and acceptance, and knowledge gain. A sense of appreciation and empowerment was also interpreted. However, potential issues relating to the relevance of contributions and use of an interpreter were identified. Discussion and conclusion The methodological approach piloted in this study offers a promising, rigorous way to evaluate PPI. The research tools require further refinement and validation.
Bibliografie:	Funding information The research is funded by the Kavli Trust (Grant: ID: A‐321629). The funder has had no involvement in the design of the study, the writing of the manuscript, or the collection, analysis and interpretation of data. ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 14 ObjectType-Article-2 ObjectType-Undefined-1 ObjectType-Feature-3 content type line 23
ISSN:	1369-6513 1369-7625 1369-7625
DOI:	10.1111/hex.12990