The Swedish medical birth register during five decades: documentation of the content and quality of the register

Pregnancy-related factors are important for short- and long-term health in mothers and offspring. The nationwide population-based Swedish Medical Birth Register (MBR) was established in 1973. The present study describes the content and quality of the MBR, using original MBR data, Swedish-language an...

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Published in:	European journal of epidemiology Vol. 38; no. 1; pp. 109 - 120
Main Authors:	Cnattingius, Sven, Källén, Karin, Sandström, Anna, Rydberg, Henny, Månsson, Helena, Stephansson, Olof, Frisell, Thomas, Ludvigsson, Jonas F.
Format:	Journal Article
Language:	English
Published:	Dordrecht Springer Netherlands 01.01.2023 Springer Nature B.V
Subjects:	Antenatal care Apgar score Birth infant Birth weight Births Body mass index Body size Cardiology Clinical Medicine Cohabitation Data Resource Documentation Electronic health records Electronic medical records Epidemiology Female Gestational age Gynaecology, Obstetrics and Reproductive Medicine Gynekologi, obstetrik och reproduktionsmedicin Humans Infant Infant, Newborn Infants Infectious Diseases Infertility Klinisk medicin Medical and Health Sciences Medicin och hälsovetenskap Medicine Medicine & Public Health Mothers Multiple births Nationwide Neonates Newborn Obstetrics Offspring Oncology Parturition Population-based pregnancy Pregnancy Premature Birth Public Health Register Stillbirth - epidemiology Sweden Sweden - epidemiology Weight Sweden Sweden Newborn Register Antenatal care Population-based pregnancy Birth infant Nationwide
ISSN:	0393-2990, 1573-7284, 1573-7284
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Abstract	Pregnancy-related factors are important for short- and long-term health in mothers and offspring. The nationwide population-based Swedish Medical Birth Register (MBR) was established in 1973. The present study describes the content and quality of the MBR, using original MBR data, Swedish-language and international publications based on the MBR. The MBR includes around 98% of all births in Sweden. From 1982 onwards, the MBR is based on prospectively recorded information in standardized antenatal, obstetric, and neonatal records. When the mother and infant are discharged from hospital, this information is forwarded to the MBR, which is updated annually. Maternal data include information from first antenatal visit on self-reported obstetric history, infertility, diseases, medication use, cohabitation status, smoking and snuff use, self-reported height and measured weight, allowing calculation of body mass index. Birth and neonatal data include date and time of birth, mode of delivery, singleton or multiple birth, gestational age, stillbirth, birth weight, birth length, head circumference, infant sex, Apgar scores, and maternal and infant diagnoses/procedures, including neonatal care. The overall quality of the MBR is very high, owing to the semi-automated data extraction from the standardized regional electronic health records, Sweden’s universal access to antenatal care, and the possibility to compare mothers and offspring to the Total Population Register in order to identify missing records. Through the unique personal identity numbers of mothers and live-born offspring, the MBR can be linked to other health registers. The Swedish MBR contains high-quality pregnancy-related information on more than 5 million births during five decades.
AbstractList	Pregnancy-related factors are important for short- and long-term health in mothers and offspring. The nationwide population-based Swedish Medical Birth Register (MBR) was established in 1973. The present study describes the content and quality of the MBR, using original MBR data, Swedish-language and international publications based on the MBR. The MBR includes around 98% of all births in Sweden. From 1982 onwards, the MBR is based on prospectively recorded information in standardized antenatal, obstetric, and neonatal records. When the mother and infant are discharged from hospital, this information is forwarded to the MBR, which is updated annually. Maternal data include information from first antenatal visit on self-reported obstetric history, infertility, diseases, medication use, cohabitation status, smoking and snuff use, self-reported height and measured weight, allowing calculation of body mass index. Birth and neonatal data include date and time of birth, mode of delivery, singleton or multiple birth, gestational age, stillbirth, birth weight, birth length, head circumference, infant sex, Apgar scores, and maternal and infant diagnoses/procedures, including neonatal care. The overall quality of the MBR is very high, owing to the semi-automated data extraction from the standardized regional electronic health records, Sweden's universal access to antenatal care, and the possibility to compare mothers and offspring to the Total Population Register in order to identify missing records. Through the unique personal identity numbers of mothers and live-born offspring, the MBR can be linked to other health registers. The Swedish MBR contains high-quality pregnancy-related information on more than 5 million births during five decades. Pregnancy-related factors are important for short- and long-term health in mothers and offspring. The nationwide population-based Swedish Medical Birth Register (MBR) was established in 1973. The present study describes the content and quality of the MBR, using original MBR data, Swedish-language and international publications based on the MBR. The MBR includes around 98% of all births in Sweden. From 1982 onwards, the MBR is based on prospectively recorded information in standardized antenatal, obstetric, and neonatal records. When the mother and infant are discharged from hospital, this information is forwarded to the MBR, which is updated annually. Maternal data include information from first antenatal visit on self-reported obstetric history, infertility, diseases, medication use, cohabitation status, smoking and snuff use, self-reported height and measured weight, allowing calculation of body mass index. Birth and neonatal data include date and time of birth, mode of delivery, singleton or multiple birth, gestational age, stillbirth, birth weight, birth length, head circumference, infant sex, Apgar scores, and maternal and infant diagnoses/procedures, including neonatal care. The overall quality of the MBR is very high, owing to the semi-automated data extraction from the standardized regional electronic health records, Sweden’s universal access to antenatal care, and the possibility to compare mothers and offspring to the Total Population Register in order to identify missing records. Through the unique personal identity numbers of mothers and live-born offspring, the MBR can be linked to other health registers. The Swedish MBR contains high-quality pregnancy-related information on more than 5 million births during five decades. Pregnancy-related factors are important for short- and long-term health in mothers and offspring. The nationwide population-based Swedish Medical Birth Register (MBR) was established in 1973. The present study describes the content and quality of the MBR, using original MBR data, Swedish-language and international publications based on the MBR. The MBR includes around 98% of all births in Sweden. From 1982 onwards, the MBR is based on prospectively recorded information in standardized antenatal, obstetric, and neonatal records. When the mother and infant are discharged from hospital, this information is forwarded to the MBR, which is updated annually. Maternal data include information from first antenatal visit on self-reported obstetric history, infertility, diseases, medication use, cohabitation status, smoking and snuff use, self-reported height and measured weight, allowing calculation of body mass index. Birth and neonatal data include date and time of birth, mode of delivery, singleton or multiple birth, gestational age, stillbirth, birth weight, birth length, head circumference, infant sex, Apgar scores, and maternal and infant diagnoses/procedures, including neonatal care. The overall quality of the MBR is very high, owing to the semi-automated data extraction from the standardized regional electronic health records, Sweden’s universal access to antenatal care, and the possibility to compare mothers and offspring to the Total Population Register in order to identify missing records. Through the unique personal identity numbers of mothers and live-born offspring, the MBR can be linked to other health registers. The Swedish MBR contains high-quality pregnancy-related information on more than 5 million births during five decades. Pregnancy-related factors are important for short- and long-term health in mothers and offspring. The nationwide population-based Swedish Medical Birth Register (MBR) was established in 1973. The present study describes the content and quality of the MBR, using original MBR data, Swedish-language and international publications based on the MBR.The MBR includes around 98% of all births in Sweden. From 1982 onwards, the MBR is based on prospectively recorded information in standardized antenatal, obstetric, and neonatal records. When the mother and infant are discharged from hospital, this information is forwarded to the MBR, which is updated annually. Maternal data include information from first antenatal visit on self-reported obstetric history, infertility, diseases, medication use, cohabitation status, smoking and snuff use, self-reported height and measured weight, allowing calculation of body mass index. Birth and neonatal data include date and time of birth, mode of delivery, singleton or multiple birth, gestational age, stillbirth, birth weight, birth length, head circumference, infant sex, Apgar scores, and maternal and infant diagnoses/procedures, including neonatal care. The overall quality of the MBR is very high, owing to the semi-automated data extraction from the standardized regional electronic health records, Sweden's universal access to antenatal care, and the possibility to compare mothers and offspring to the Total Population Register in order to identify missing records. Through the unique personal identity numbers of mothers and live-born offspring, the MBR can be linked to other health registers. The Swedish MBR contains high-quality pregnancy-related information on more than 5 million births during five decades.Pregnancy-related factors are important for short- and long-term health in mothers and offspring. The nationwide population-based Swedish Medical Birth Register (MBR) was established in 1973. The present study describes the content and quality of the MBR, using original MBR data, Swedish-language and international publications based on the MBR.The MBR includes around 98% of all births in Sweden. From 1982 onwards, the MBR is based on prospectively recorded information in standardized antenatal, obstetric, and neonatal records. When the mother and infant are discharged from hospital, this information is forwarded to the MBR, which is updated annually. Maternal data include information from first antenatal visit on self-reported obstetric history, infertility, diseases, medication use, cohabitation status, smoking and snuff use, self-reported height and measured weight, allowing calculation of body mass index. Birth and neonatal data include date and time of birth, mode of delivery, singleton or multiple birth, gestational age, stillbirth, birth weight, birth length, head circumference, infant sex, Apgar scores, and maternal and infant diagnoses/procedures, including neonatal care. The overall quality of the MBR is very high, owing to the semi-automated data extraction from the standardized regional electronic health records, Sweden's universal access to antenatal care, and the possibility to compare mothers and offspring to the Total Population Register in order to identify missing records. Through the unique personal identity numbers of mothers and live-born offspring, the MBR can be linked to other health registers. The Swedish MBR contains high-quality pregnancy-related information on more than 5 million births during five decades.
Author	Cnattingius, Sven Sandström, Anna Frisell, Thomas Månsson, Helena Källén, Karin Ludvigsson, Jonas F. Rydberg, Henny Stephansson, Olof
Author_xml	– sequence: 1 givenname: Sven surname: Cnattingius fullname: Cnattingius, Sven organization: Clinical Epidemiology Division, Department of Medicine, Karolinska Institutet – sequence: 2 givenname: Karin surname: Källén fullname: Källén, Karin organization: Department of Clinical Sciences, Centre of Reproduction Epidemiology, Tornblad Institute, Lund University – sequence: 3 givenname: Anna surname: Sandström fullname: Sandström, Anna organization: Clinical Epidemiology Division, Department of Medicine, Karolinska Institutet, Department of Women’s Health, Division of Obstetrics, Karolinska University Hospital – sequence: 4 givenname: Henny surname: Rydberg fullname: Rydberg, Henny organization: Statistics Unit 1, Department of Registers and Statistics, National Board of Health and Welfare – sequence: 5 givenname: Helena surname: Månsson fullname: Månsson, Helena organization: Statistics Unit 1, Department of Registers and Statistics, National Board of Health and Welfare – sequence: 6 givenname: Olof surname: Stephansson fullname: Stephansson, Olof organization: Clinical Epidemiology Division, Department of Medicine, Karolinska Institutet, Department of Women’s Health, Division of Obstetrics, Karolinska University Hospital – sequence: 7 givenname: Thomas surname: Frisell fullname: Frisell, Thomas organization: Clinical Epidemiology Division, Department of Medicine, Karolinska Institutet – sequence: 8 givenname: Jonas F. orcidid: 0000-0003-1024-5602 surname: Ludvigsson fullname: Ludvigsson, Jonas F. email: jonasludvigsson@yahoo.com organization: Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Department of Pediatrics, Örebro University Hospital, Department of Medicine, Columbia University College of Physicians and Surgeons
BackLink	https://www.ncbi.nlm.nih.gov/pubmed/36595114$$D View this record in MEDLINE/PubMed https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-103346$$DView record from Swedish Publication Index (Örebro universitet) http://kipublications.ki.se/Default.aspx?queryparsed=id:151570392$$DView record from Swedish Publication Index (Karolinska Institutet)
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ContentType	Journal Article
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CorporateAuthor	Section V Miljöepidemiologi Institutionen för kliniska vetenskaper, Lund Lunds universitet Profile areas and other strong research environments Department of Laboratory Medicine Lund University Sektion V Avdelningen för arbets- och miljömedicin Obstetrics and Gynaecology (Lund) Institutionen för laboratoriemedicin Department of Clinical Sciences, Lund Division of Occupational and Environmental Medicine, Lund University Strategiska forskningsområden (SFO) EpiHealth: Epidemiology for Health Obstetrik och gynekologi, Lund Faculty of Medicine Strategic research areas (SRA) eSSENCE: The e-Science Collaboration Medicinska fakulteten Tornblad Institute Environmental Epidemiology Profilområden och andra starka forskningsmiljöer Tornbladinstitutet
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Keywords	Sweden Newborn Register Antenatal care Population-based pregnancy Birth infant Nationwide
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SubjectTerms	Antenatal care Apgar score Birth infant Birth weight Births Body mass index Body size Cardiology Clinical Medicine Cohabitation Data Resource Documentation Electronic health records Electronic medical records Epidemiology Female Gestational age Gynaecology, Obstetrics and Reproductive Medicine Gynekologi, obstetrik och reproduktionsmedicin Humans Infant Infant, Newborn Infants Infectious Diseases Infertility Klinisk medicin Medical and Health Sciences Medicin och hälsovetenskap Medicine Medicine & Public Health Mothers Multiple births Nationwide Neonates Newborn Obstetrics Offspring Oncology Parturition Population-based pregnancy Pregnancy Premature Birth Public Health Register Stillbirth - epidemiology Sweden Sweden - epidemiology Weight
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