Development and validation of the Pediatric Epilepsy Medication Self-Management Questionnaire

Study aims were to describe the development and validation of a Pediatric Epilepsy Medication Self-Management Questionnaire (PEMSQ) for caregivers of children 2-14 years. It was expected that PEMSQ scales would have 1) factors with high internal consistency (e.g., Cronbach's alpha > 0.70) an...

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Vydáno v:Epilepsy & behavior Ročník 18; číslo 1; s. 94 - 99
Hlavní autoři: Modi, Avani C., Monahan, Sally, Daniels, Dee, Glauser, Tracy A.
Médium: Journal Article
Jazyk:angličtina
Vydáno: United States Elsevier Inc 01.05.2010
Témata:
Adherence
Adolescent
Analysis of Variance
Anticonvulsants - therapeutic use
Barriers
Child
Child, Preschool
Children
Disease knowledge
Efficacy
Epilepsy - drug therapy
Factor Analysis, Statistical
Family management
Female
Humans
Male
Medication Adherence
Neurology
Psychometric
Reliability
Seizures
Self Administration
Surveys and Questionnaires
Validity
Adherence
Validity
Psychometric
Barriers
Family management
Efficacy
Children
Disease knowledge
Reliability
Seizures
ISSN:1525-5050, 1525-5069, 1525-5069
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Shrnutí:Study aims were to describe the development and validation of a Pediatric Epilepsy Medication Self-Management Questionnaire (PEMSQ) for caregivers of children 2-14 years. It was expected that PEMSQ scales would have 1) factors with high internal consistency (e.g., Cronbach's alpha > 0.70) and 2) moderate associations with adherence and seizures. Participants included caregivers of 119 children with epilepsy (M age = 7.2 yrs, 36% female, 72% Caucasian) who completed the PEMSQ, demographics questionnaire, and AED adherence was assessed (e.g., electronic monitors, self-report). Factor analysis was conducted and internal consistency and construct validity were assessed. The final PEMSQ is 27 items with four scales (Epilepsy and Treatment Knowledge and Expectations, Adherence to Medications and Clinic Appointments, Barriers to Medication Adherence, and Beliefs about Medication Efficacy) accounting for 88% variance. Cronbach's alphas ranged from 0.68-0.85. Significant associations were found between PEMSQ scales, adherence, and seizures. The PEMSQ represents the first self-management measure validated for caregivers of children with epilepsy, with clinical and research utility.
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ISSN:1525-5050
1525-5069
1525-5069
DOI:10.1016/j.yebeh.2010.03.009