Seriously Ill Patients’ Prioritized Goals and Their Clinicians’ Perceptions of Those Goals

Seriously ill patients whose prioritized healthcare goals are understood by their clinicians are likely better positioned to receive goal-concordant care. To examine the proportion of seriously ill patients whose prioritized healthcare goal is accurately perceived by their clinician and identify fac...

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Bibliographic Details
Published in:Journal of pain and symptom management Vol. 64; no. 4; pp. 410 - 418
Main Authors: Modes, Matthew E., Engelberg, Ruth A., Nielsen, Elizabeth L., Brumback, Lyndia C., Neville, Thanh H., Walling, Anne M., Curtis, J. Randall, Kross, Erin K.
Format: Journal Article
Language:English
Published: United States Elsevier Inc 01.10.2022
Subjects:
Advance care planning (ACP)
Anesthesia
Clinician identification
Clinician perception
Clinician understanding
End-of-life
Goal-concordant care
Goals
Goals-of-care
Pain Medicine
Palliative care
Preferences
Serious illness
Values
End-of-life
Serious illness
Goals-of-care
Goal-concordant care
Clinician identification
Clinician perception
Values
Palliative care
Clinician understanding
Goals
Preferences
Advance care planning (ACP)
goal-concordant care
preferences
goals-of-care
values
serious illness
end-of-life
clinician understanding
clinician identification
clinician perception
palliative care
goals
advance care planning (ACP)
ISSN:0885-3924, 1873-6513, 1873-6513
Online Access:Get full text
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Summary:Seriously ill patients whose prioritized healthcare goals are understood by their clinicians are likely better positioned to receive goal-concordant care. To examine the proportion of seriously ill patients whose prioritized healthcare goal is accurately perceived by their clinician and identify factors associated with accurate perception. Secondary analysis of a multicenter cluster-randomized trial of outpatients with serious illness and their clinicians. Approximately two weeks after a clinic visit, patients reported their current prioritized healthcare goal- extending life over relief of pain and discomfort, or relief of pain and discomfort over extending life - and clinicians reported their perception of their patients’ current prioritized healthcare goal; matching these items defined accurate perception. Of 252 patients with a prioritized healthcare goal, 60% had their goal accurately perceived by their clinician, 27% were cared for by clinicians who perceived prioritization of the alternative goal, and 13% had their clinician answer unsure. Patients who were older (OR 1.03 per year; 95%CI 1.01, 1.05), had stable goals (OR 2.52; 95%CI 1.26, 5.05), and had a recent goals-of-care discussion (OR 1.78, 95%CI 1.00, 3.16) were more likely to have their goals accurately perceived. A majority of seriously ill outpatients are cared for by clinicians who accurately perceive their patients’ prioritized healthcare goals. However, a substantial portion are not and may be at higher risk for goal-discordant care. Interventions that facilitate goals-of-care discussions may help align care with goals, as recent discussions were associated with accurate perceptions of patients’ prioritized goals.
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ISSN:0885-3924
1873-6513
1873-6513
DOI:10.1016/j.jpainsymman.2022.06.004