The European health data space: Too big to succeed?

•In the current Proposal, the EHDS will not achieve its stated aims.•The EHDS will entail diminished safeguards for patients and citizens.•Health professionals are assigned unsustainable administrative burdens, detracting from patient care.•Current data governance practice may insufficiently transla...

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Vydané v:	Health policy (Amsterdam) Ročník 135; s. 104861
Hlavní autori:	Marelli, Luca, Stevens, Marthe, Sharon, Tamar, Van Hoyweghen, Ine, Boeckhout, Martin, Colussi, Ilaria, Degelsegger-Márquez, Alexander, El-Sayed, Seliem, Hoeyer, Klaus, van Kessel, Robin, Zając, Dorota Krekora, Matei, Mihaela, Roda, Sara, Prainsack, Barbara, Schlünder, Irene, Shabani, Mahsa, Southerington, Tom
Médium:	Journal Article
Jazyk:	English
Vydavateľské údaje:	Ireland Elsevier B.V 01.09.2023 Elsevier Scientific Publishers
Predmet:	Data governance Data sharing EHDS European health data space Health Policy Humans Information Dissemination Internal Medicine Policy Comment Policy Making Public value European health data space EHDS Data governance Public value Data sharing
ISSN:	0168-8510, 1872-6054, 1872-6054
On-line prístup:	Získať plný text
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