Assessment of Quality of Life in Young Patients with Single Ventricle after the Fontan Operation

To assess self-reported quality of life (QOL) in a large multicenter cohort of adolescent and young adults surviving Fontan. Cross-sectional. The Pediatric Quality of Life Inventory (PedsQL) was administered to 408 survivors of Fontan ages 13-25 years enrolled in the Pediatric Heart Network Fontan F...

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Bibliographic Details
Published in:	The Journal of pediatrics Vol. 170; pp. 166 - 172.e1
Main Authors:	Uzark, Karen, Zak, Victor, Shrader, Peter, McCrindle, Brian W., Radojewski, Elizabeth, Varni, James W., Daniels, Kaitlyn, Handisides, Jill, Hill, Kevin D., Lambert, Linda M., Margossian, Renee, Pemberton, Victoria L., Lai, Wyman W., Atz, Andrew M., Pearson, Gail, Stylianou, Mario, Kaltman, Jonathan, Sleeper, Lynn, Colan, Steven, Gallagher, Dianne, Mahony, Lynn, Newburger, Jane, Breitbart, Roger, Dunbar-Masterson, Carolyn, Buckley, Lisa-Jean, Trainor, Bethany, Korsin, Rosalind, Shaddy, Robert, Gaynor, J. William, Paridon, Stephen M., Morrison, Tonia, Mirarchi, Nicole, Li, Jennifer S., Barker, Piers, Xu, Mingfen, Saul, J. Philip, Infinger, Patricia, Frampton, Ann Harvey, Minich, LuAnn, Williams, Richard, Lambert, Linda, McCrindle, Brian, Khaikin, Svetlana, Walter, Patricia, Marino, Bradley, Artman, Michael, Feltes, Timothy, Johnson, Julie, Krischer, Jeffrey, Matherne, G. Paul, Cook, Nakela, Kugler, John, Gordon, David, Driscoll, David J., Galantowicz, Mark, Hunsberger, Sally A., Taylor, Holly, Knight, Thomas J., Webb, Catherine L.
Format:	Journal Article
Language:	English
Published:	United States Elsevier Inc 01.03.2016
Subjects:	Adolescent Adult Age Factors Cross-Sectional Studies Female Follow-Up Studies Fontan Procedure - psychology Humans Male Pediatrics Quality of Life Surveys and Questionnaires Survivors United States - epidemiology Young Adult United States CHQ-87 Fontan 2 Fontan 1 PedsQL CHD QOL SF-36 Pediatric Quality of Life Inventory Short Form Health Survey Fontan Follow-up Study Pediatric Heart Network Fontan Cross-Sectional Study Congenital heart disease Child Health Questionnaire Quality of life
ISSN:	0022-3476, 1097-6833, 1097-6833
Online Access:	Get full text
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