Improving Outcomes Measurement in Palliative Care: The Lasting Impact of Randy Curtis and his Collaborators

Palliative care research is deeply challenging for many reasons, not the least of which is the conceptual and operational difficulty of measuring outcomes within a seriously ill population such as critically ill patients and their family members. This manuscript describes how Randy Curtis and his ne...

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Bibliographic Details
Published in:Journal of pain and symptom management Vol. 63; no. 6; pp. e579 - e586
Main Authors: Cox, Christopher E., Ashana, Deepshikha Charan, Khandelwal, Nita, Kamal, Arif H., Engelberg, Ruth A.
Format: Journal Article
Language:English
Published: United States Elsevier Inc 01.06.2022
Subjects:
Anesthesia
critical illness
Critical Illness - therapy
Family
Hospice and Palliative Care Nursing
Humans
Pain Medicine
Palliative Care
quality of communication
Quality of death and dying
quality of communication
critical illness
Quality of death and dying
palliative care
ISSN:0885-3924, 1873-6513, 1873-6513
Online Access:Get full text
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Summary:Palliative care research is deeply challenging for many reasons, not the least of which is the conceptual and operational difficulty of measuring outcomes within a seriously ill population such as critically ill patients and their family members. This manuscript describes how Randy Curtis and his network of collaborators successfully confronted some of the most vexing outcomes measurement problems in the field, and by so doing, have enhanced clinical care and research alike. Beginning with a discussion of the clinical challenges of measurement in palliative care, we then discuss a selection of the novel measures developed by Randy and his collaborators and conclude with a look toward the future evolution of these concepts. Randy and his foundational work, including both successes as well as the occasional near miss, have enriched and advanced the field as well as (immeasurably) impacted the work of so many others—including this manuscript's authors.
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ISSN:0885-3924
1873-6513
1873-6513
DOI:10.1016/j.jpainsymman.2022.03.012