Giving and Withholding of Information following Genomic Screening: Challenges Identified in a Study of Primary Care Physicians in Estonia

The use of predictive genomic information to improve medical care remains a contentious topic. However, it is generally agreed that the potential of genomics to improve medicine relies on medical care providers’ ability to effectively communicate and put in context the meaning of test results. As th...

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Vydáno v:Journal of genetic counseling Ročník 21; číslo 4; s. 591 - 604
Hlavní autoři: Leitsalu, Liis, Hercher, Laura, Metspalu, Andres
Médium: Journal Article
Jazyk:angličtina
Vydáno: Boston Springer US 01.08.2012
Blackwell Publishing Ltd
Témata:
Best interests
Biomedical and Life Sciences
Biomedicine
Clinical Psychology
Consumers
Deception
Decision making
Disease
Doctors
Estonia
Ethics
Genetic counseling
Genetic Testing
Genetics
Genomes
Genomic healthcare
Genomic information
Genomics
Gynecology
Health care
Health services
Human Genetics
Humans
Information
Judgments
Medical diagnosis
Medical personnel
Medical screening
Medicine
Original Research
Physicians
Physicians, Primary Care
Predictive genetic testing
Primary care
Primary care physicians
Primary health care
Public Health
Screening
Tests
Estonia
United States > US
Genomic information
Primary care physicians
Genomic healthcare
Predictive genetic testing
ISSN:1059-7700, 1573-3599, 1573-3599
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Shrnutí:The use of predictive genomic information to improve medical care remains a contentious topic. However, it is generally agreed that the potential of genomics to improve medicine relies on medical care providers’ ability to effectively communicate and put in context the meaning of test results. As the amount of information available increasingly outstrips providers’ ability to offer qualified judgments on what the information means, consumers inevitably will be faced with test results of uncertain significance, as well as difficult questions about what they do or do not wish to know. Results of this survey of 64 primary care doctors in Estonia suggests that it may be inherently difficult for physicians to withhold genetic information obtained by genome scans or sequencing, even when they believe that having that information is not in the best interests of their patient. The descriptive data suggest introducing genomic medicine through primary care physicians, as proposed by the Estonian Genome Center of the University of Tartu, will require further genetics education as well as a carefully developed set of guidelines for determining where, when and how to use test results.
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ISSN:1059-7700
1573-3599
1573-3599
DOI:10.1007/s10897-011-9424-3